Oh dear. Not so good

[Bfp1]

Hi all. Sorry to say I was discharged. Managed to get in on a frame having been carried up the stairs. I then fell 2-3 times on the floor. Then when I was helped up my legs collapsed. I managed to contact my consultant - thank goodness bless

Him he had given me his mobile for emergency and I used it in desperation. He told me to get back to a and e and I should be readmitted. Here I am at midnight in a lot of pain. Wondering if this is related to chemo cyclo. And due for next chemo Monday.

I feel pretty desperate but I am trying to stay calm. They put a frame around the toilet. But I couldn’t stand at all. Terribly concerned about the future. I am 60 and want a full life -

At least just to stand up. Lots of pain in legs. Thank you for your support. Trying to hold it together!

[Yellowbluebell]

I am sorry you are feeling so dreadful. Is it possible to go back to A&E like ioir rheumy has reccomend. That would be my advice as you cant continuously feel so ill.

[Bfp1 in reply to Yellowbluebell]

Thanks for the reply. Now in A and E waiting for hours. Now I have IV paracetamol. Will be admitted during the night. It’s a nightmare. But I am determined to try to win this. Thank you for being in touch. It helps xx

[jinasc in reply to Bfp1]

You are in the best place and obviously your Consultant is a very caring man, not all of them give a patient their direct communication to be used at any time.

Relax and let them take care of you and this time, ask them to send you to a, what we call (up here) ' a short term stay home' (probably has a proper name just I don't know it. It never lasts more than six weeks but it does help people get back their confidence and be a whole heap better for being looked after and built-up.

My friend (whom I have known since I was 5 and is now 83) went straight from the hospital for 6 weeks and now has been home for 4 weeks and the extra support they have arranged is working fine.

Chin-up and hugs

[OutdoorsyGal in reply to jinasc]

Rehab?

[jinasc in reply to OutdoorsyGal]

Thank you, for the life of me I could not remember the word at the time of writing.

[SheffieldJane]

Your consultant sounds pretty accessible which is good. I am sorry that you had to go through this. You should never have been discharged. Try to stay in the moment for now and concentrate on getting well again. Let us know how it is going for you. 🌼

[Blearyeyed]

How are things going now ?

Please keep us updated!

[Hidden in reply to Blearyeyed]

Ditto

[Bfp1]

Hi. I finally got a bed at 4.30. They have now transferred me to a side room. I haven’t been able to stand yet and have bad leg and hip pain and apparently am

Bruised. One doc thinks it might be a reaction to steroids as I have had a lot. They are going to explore a few options including a rare condition affecting my lungs and nose. My chest infection has responded well to the antibiotic. Chemo still planned for Monday. I am concerned that I need my legs back if only

To get me from bed to commode or toilet . I wk keep you posted. OBs now! xx

[Blearyeyed in reply to Bfp1]

Well my thoughts are with you and I'm sure everyone else will be wishing and praying for you to come through this very soon.

Keep calm and I hope that the treatment doesn't treat you too roughly.

Thanks for letting us know what is going on and please keep us updated when you feel up to it , I know we are all holding out for good news xxx

[Hidden in reply to Bfp1]

Hope you are doing a little better. 💜

[Hidden]

Oh my sounds like you have hit the limit of endurance. Next time tell them you are going to faint.. they will get you into a bed much quicker.

One time I took my dad to Emercency room and told him to act real sick so he lolled his head to the side and walla we got a bed.

Then after doctor came in I told dad you can quick acting sick now because you really are.... ok it really was funny at the time..

Sincerely you are in my prayers..🦋

[dancersize]

My Mum aged 93 was in a car accident but didn't go to the hospital as she said she felt oK Visited the doctor a couple of days later. Another week and her legs gave way on a couple of occasions. This time the hospital found she had four broken ribs and the doctor said our bodies can collapse if we are in pain.(thus causing us more pain) After a spell in hospital for rehab she has been able to go home although hasn't been driving, accept all pain management and I hope you recover the use of your legs soon. It is very frightening when they give way.

[Bfp1 in reply to dancersize]

Thanks. That gives me encouragement. I’m so much pain

[Quinacridone in reply to Bfp1]

Thinking of you and hoping it all gets better very fast or at least that you get some relief from the terrible pain.xxx

[Whippetygirl]

60yrs old is so young to be going through this, my heart goes out to you. Try and keep strong , there are some amazing people on this forum that can give you excellent advice.x

[Thelmarina]

You poor love. How completely rotten - no wonder you’re scared. Great your consultant is so good and that you’re in the right place. Relax now and let the experts take over - take comfort, and remember you will not be the first patient to have these symptoms and side effects, they have all that lovely experience and know what they are doing. Sending a big and gentle hug 🤗

[Freshmimt]

Hope your feeling a little better today, you really are having a rough time,

Take care and best wishes x

[stonecreek]

So very sorry! No one should be in that much pain!. Are they giving you some pain meds.?

Know you have many friends here thinking of you and sending prayers for a fast recovery. Hugs!!