So went to see out of hours doctors with symptoms, he sent me to gpau, saw by 2 doctors who want me to increase pred back to 15mg, and back to hospital tomorrow to see rheumatologist .
Update : So went to see out of hours doctors with... - PMRGCAuk
Update
Glad to hear you went. I think it's a good outcome. Hopefully you will find some benefit from the extra pred. That's really good you are seeing the Rheumy tomorrow. There's obviously something going on that needs monitoring. I am glad you let us know. 🌻
Thank you for letting us know. I was worried about you!
Sounds like a good start. Thank you for going.
Hope you are improving.
If you feel are able please let us know how things went with the Rheumatologist.
I was feeling so unwell I stayed in bed all day and didn't get to see the rheumatologist. I have upped my dose back to 15mg and I am feeling much better now. My head feels so much better as the pressure has been relieved and I intend to stay at 15mg for a few weeks. I still have achy jaw after eating but I am wondering if it's dental problem. I am wondering if I tried to reduce my pred too quickly. I am still having migraine but it's nothing new as I have been having them for about 50years. Thanks so much for the interest. I'm going away for a few days on Friday so I am sure that will help me to get back on track.