It's been a while since I was here as after being diagnosed with PMR. I was then later told by the rheumatologist that I didn't have that.
As short as I can this is my story... In 2014 I had a nasty virus for 6 weeks and also was still grief stricken after losing my mum (my world). I then developed a pain in my hip, shoulder, thighs and struggled to do normal things I was 49 at the time. Eventually after 6 months my gp diagnosed PMR. Steroids given and results great. I had during the following year a few hiccups, temple headache, raised eye pressure. Pressure was checked at hospital and confirmed OK. Then my gp had a accident so a locum was there, I had esr checked regularly and this is where things changed. The locum dis believed I had PMR as she said my ESR was never high enough and I was too young. By the way my ESR was high 20's at worst and got down to 6 on steroids. So she referred my to rhemy. My gp never had referred me as I was getting better and treatment was working well. The locum insisted I stopped steroids which I didn't, but I weaned myself from 10mg to 7mg by the time my apt came. He also disagreed with PMR and gave me 10 weeks to be drug free!!!. 10 weeks later I felt like I'd hit a steam train, I gave up work, my pain was back with a vengeance and I hurt in more place than before, hands, back, ankles. Basically I've felt wiped out. On my return I was told I had Fibromyalgia and given drugs that didn't work and discharged from his care. My daily life has become not leaving the house for days, my pain completely debilitating and my life non existent. Throughout the past 5 months my gp has still thought it was PMR as Fibromyalgia doesn't present with a raised esr and steroids don't work as a treatment. 3 weeks ago she decided that a 2nd opinion was required and took my ESR which was 28. A referral was done and I was waiting. However on Fri I woke with a temple headache and couldn't stop the pain, I still had it yesterday and then felt my left temple raised and sore. I went to gp this morning and her concern now is its GCA. Urgent bloods have been taken and she prescribed 40mg of steroids to start today. I have to return for results tomorrow and if raised again she want me to be seen this week. To say I am angry, frustrated, scared, upset is an understatement. I am thrilled my gp is behind me, but due to other involvement feel I have gone back 3 years!!! So sorry for the essay and hope someone will read till the end!! Has anyone else experienced anything like my story. Is it likely I have Gca? Could it still be PMR? If anyone could comment I would be grateful. Thanks for reading.