I've mentioned my interesting xmas (yet again) so it is only fair to explain why I have perhaps seemed a tad quiet recently.
While we were on holiday in Malta OH noticed some bleeding and went to the GP as soon as we got back, the Wednesday before xmas. She sent him directly to the hospital who kept him. He is on a NOAC (anti-coagulant drug) called rivaroxaban/Xarelto and they discovered that this drug, supposedly not requiring any monitoring, was at about 10 times the level it should be in his blood! No wonder there was some bleeding! They assumed that was all it was, wait until the blood level fell and it would be fine, and he came home on the Friday.
But he wasn't a happy bunny at all and on xmas eve I decided I'd had enough and shouted, screamed and stamped my foot until he agreed to go back. We were met by a surgeon who really did excel in the "Poor bedside manner" stakes - shouted at us we should have arrived earlier and was just generally unpleasant. He did the same to the next case some hours later - who happened to end up in the same room as OH. To be fair, once some tests had been done he did turn into a totally different and very nice person and agreed there was an infection as well and it was right he'd come. In fact over the time he was in, this guy probably did most of benefit.
It hasn't been the most festive of xmases as you can imagine - I have been at the hospital 3 times a day most days - Sundays and holidays get an extra morning visiting time and it was obvious I was expected to entertain him - which would have been easier if he had been feeling better and could have had a conversation. When I felt rubbish in hospital I just wanted to be left alone... You can't just sit there reading can you?
On xmas day, in the middle of the afternoon (post Queen's speech I suppose), I had ham - a slice from the butcher that needed eating (OH's, not my choice ) on some wholegrain bread and found a chunk of xmas pud from last year in the freezer for supper. The only thing I had made was brandy butter! And in doing that I had managed to slice my finger quite dramatically on the processor blade - not sure how much blood got in the BB, I also am on anticoagulant therapy!! Tastes OK though. Still haven't got round to making mince pies.
Our younger daughter and family are on their way here for a few days - but yesterday evening she and her husband developed what we assume was food poisoning from a baked camembert - she ate most and was most ill, the son ate none and was fine, dad had a bit and was only slightly wobbly. Anyhow - they are safely at the hotel at the UK airport. I will meet them at Innsbruck tomorrow morning all being well - and not too many German tourists bunging up the motorway going home.
So next year I shall refuse to even THINK about xmas - Bah Humbug!!!!
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I had quietly wondered what was going on. So very sorry. Hope that things turn around really quickly and you have a good, if quiet, time with your family. <3
Gosh, what a thoroughly miserable time you've had! When things go wrong, they sure do.....in spades. 2019 HAS to be better for you all. x
Well, that's a story and a half and I am in complete sympathy for you. I can only compete with a gastly cold which has coused me to flare, so feeling a bit low at the moment. I hope things improve for you soon so that you can get some rest and perhaps get some enjoyment back for the New Year.
Take care PMRpro and I wish you a happier time to come
Phew Eileen, that's a relief. Thought it was because of something I'd said..
But seriously (yes, unusual for me), sorry to hear you've (all) had a miserable Chrimbole. Sounds a bit of a nightmare generally...
Try to keep your chin up and remember the old saying: 'This, too, will pass'. Best wishes for a peaceful New Year and a healthier 2019. I'm sure many of Us Lot look forward to you getting back on the case here.
Sometimes l think Christmas should be abandoned, l’m in bed with a cold thanks to an idiot who kissed & hugged me on Boxing Day, l then discovered shortly after had a cough & cold, Merry B🤬 Christmas!
Hope Daughter & Co are feeling much better soon. Take Care of you, as you’re always answering the rest of us on here.
We’re having New Year Celebrations as Son & Daughter in Law arrive from France tomorrow, they’ve bern in the U.K. for a couple of days catching up with friends.
So everyone’s coming for Dinner tomorrow including Charlotte, so hope l feel better.
Well you could always pretend to be like the neighbours!....but seriously, health is the most important thing for you both, xmas doesn't respect that.......plenty of rest....enjoy your family, and buy the mince pies!
Keep us posted......good health to you both for 2019.......
Fed up of the whole thing so I ran away this Christmas. Booked a cottage at the seaside and very lovely it was too. And the boys came - Chester bijon frise and Albert lhasa apso. Bah Humbug.
Oh Angela what a selfish pig to kiss you when full of germs!!! Why do people do it. I get this all the time. Someone will belatedly say “ oh I probably shouldn’t be here I’ve got “ a flu” “. I get irritated by that as well. Aussies say “A FLU” 😡😡😡😡😡. I now say “ I am not too thrilled to hear that. I don’t want your germs”. I don’t care if it’s rude I am sick of it. And now you are ill and you DONT NEED IT. Hope you shake the bugs off quickly darling xxxxxxxxxx
PS sorry if that sounds crass, it wasn't meant to, it was a weak attempt to make you smile. Actually what I had noticed was that you answered a question on xmas day which impressed me. Now I'm even more impressed. Remember your own needs while all this is going on.
Sorry you had all this worry, hope OH recovers soon.
When things go wrong for you they do it in spades ♠️Hope you are both much better and have a lovely quiet time with the family. All good wishes for the New Year.
I am so sorry that you have had such a stressful Christmas,l trust that everything is going well with your OH.It did not help that the surgeon was not in the best of moods,especially as you must have been very worried and it was meant to be the season of goodwill ! Thank goodness he was much more helpful later. Christmas takes a lot of time to prepare and there is always a chance that something unexpected can spoil all our efforts.l hope that your daughter and her husband have recovered from the food poisoning,my daughter in law had a bug over Christmas and my grandson was ill after arriving in Canada for Christmas with his partners family,to top that his nan and grandad also went down with the sickness bug on Boxing Day.l hope that you will have the Christmas you missed when your daughter and her family arrive,and that all will be well with your husband.l wish you both a new year of good health and happiness .Take care and thankyou for all your good advice on this forum.
Or... smear some warm, soft and gueuy Camambert over the draft seals on the double glazed windows and patio doors to prevent draughts? On second thoughts, better not!
Trust you....it would need to be open to let the smell out! I had blue cheese in the fridge over christmas and you could smell it through the door - needless to say the christmas spirit rang out a joyous farewell to it.........
Snap! - watching snooker too. Looking forward to the final should be good. Been relaxing as have to rest following cataract op yesterday- vision great - soo pleased with the result.
Excellent vision result then. Good for you matey. Your be able to appreciate those plants & trees all the better. Heart consultant for myself tomorrow!
Sure will, can’t believe how vibrant the colours are. Watching Federer play the young Greek Tsitsipas - putting up a good fight. Being taken out to lunch so another relaxing day. Hard frost here.
Yer! Thanks. See how it goes! Was supposed to have an MRI but it hasn't happened yet! No frost here. Determined to have a stroll today up the cut. Haven't done much the last week or two. Enjoy your lunch. ATB
Maybe contaminated after? Must say I never knew cheese was questionable. Thought aged cheeses were designed specifically to preserve dairy goodness for the long term.
An aged woman of my acquaintance was in hospital for several days, maybe longer, and they thought she would die, from food poisoning. It appears, through process of elimination, to have been from contaminated bean sprouts.
They would have been sprouts she bought so the producer should have been doing this. But it's not certain it was the source as she had eaten a number of other raw greens around the same time. We have long been warned never to eat sprouts raw. There was a huge recall of romaine lettuce, from California, in much of North America recently because of e.coli. And I note with regret that the local company which packaged mixed prepared greens (like cabbage, broccoli, kale) for an easy winter salad or stirfry seems to have proactively decided it's not worth the risk and isn't selling it any more.
I've had that experience too, but I've never felt comfortable trusting a big operation to be able to do it properly. Problem with some of these things, of course, is if the water the greens are growing in is contaminated I think it's right in the cells of the leaf and no amount of washing will get rid of it. I shall try to grow mesclun in-house from now on. It was great being able to harvest salad nearly daily from our garden last summer but I won't have that luxury from now on.
~Yes indeed I can believe the e-coli absolutely alive and well with our raw greens as been hospitalized 3 summers in a row with gastro-intestinal issues since PMR. That is why I now grow my own organic greens here at home - piece of mind ~
So so sorry to hear of your rubbish Christmas and massive empathy and sympathy wending it's way . Fingers crossed for an excellent New Year for you both and knock back a glass or two of vino immediately.
He won't be going back on it. I chose Pradaxa as it is 2x daily and every so often I leave a dose or two out. There is also an antidote. I'd go back to sintrom (like warfarin) if I could - but my INR was all over the place.
Hi my husband also nearly bled to death through riveroxaban a week before xmas, I had an appointment with rheumy, daughter arrived to take me just as the ambulance arrived. He had been leaning over the bathroom sink bleeding and holding his nose for 30mins. Para's arrived In 3mins and took him off blue lights and all. With help of other daughter I managed to keep rheumy appointment.
That's a Christmas you DON'T deserve...and you still made time to help us here from time to time, even if less than usual. Hoping a cloudless and flareless New Year makes up for it!
Sorry to hear that Pro. What a nightmare! Christmas is certainly not our favourite time here too! We both don't enjoy visiting in hospital either & I don't want to be visited when I'm in there! Hang in there you're a Gem. ATB
Oh that’s really awful. I’m sorry sweetheart. It’s very brave of you to describe it the way you have as I can only imagine how scary and horrible it all was. You have every right to be furious. Why wasn’t the proper monitoring done 😡😡☹️☹️ And no doctor should be unpleasant to you. Being nice later isn’t good enough. When you are scared and stressed you need support and reassurance. You are handling it all marvellously. Please keep us updated. As things settle down you could always plan a Christmas on Valentines Day for the two of you but my guess is you are sick of the whole thing. Chin up. Spring is coming. I feel so sorry for you ❤️❤️❤️❤️❤️❤️❤️
There is no monitoring - the USP of these new drugs is they don't NEED monitoring. We thought we had waited long enough after their launch but apparently not!!!
Sorry about all this happening at anytime never mind at Xmas , if I had to shout, scream and stamp the feet I would have been needing a ambulance. Hope a better New Year . Carol
Blimey , if I could I would come over next year bundle up everything to do with Xmas , scrunch it up , chuck it off a tall building and stamp up and down on it.... Oh , then set fire to it , just so that you could escape Christmas entirely.
You have a worse Christmas Curse than our family , and that's saying something ! I sometimes wonder if I was Herod in a previous life and am now paying the price . Being a Grinch isn't be a mean thing for you its a matter of survival, the only way to keep you alive.
Because we had heard from you occasionally I thought that you had already just decided to hide your head under the parapet until we had all stopped talking about Xmas and every Bauble had disappeared , I wish I had known earlier even if all I could have done was tell you the odd Non Christmas related joke to cheer you up a bit after all those hospital visits.
We know you are sorted and know what to do but at least we could have helped you raise a smile by sending a bit of love and chat your way , next time you seem quite quiet I'm checking.
Sorry for all you have been through , and so sorry for not realising you are being quiet because you had alot on and didn't want us to worry about you.
I want to Hug you or give you a target to hit with a baseball bat so you can vent all that anger over Christmas you must have built up for years , I will even wear a Santa hat to help your aim!
Just glad that you are getting a bit of support from visitors now so you can have a little break.
But will they be able to visit the OH if they have had food poisoning , are they totally recovered now ?
When will the OH come out , or is he home?
Will someone ever give you a proper break!!
Right , as I ended up surrounded by binge eating revellers while on rice and water and all you have eaten is blood infused brandy butter , that bonfire of festivities, you deserve to be allowed to set fire to Xmas with a flame thrower and I am going to shout ,
' Bah Humbug All over your Arse Santa! Leave Me and PMRPro alone' ,
hoping not to get struck by lightning farted from a reindeers backside , then researching the least Christmassy place in the World and booking us our tickets to escape it all next year. Seriously I am I will let you know .
Really Big Hugs , love and please let us know how you are doing , we can't physically help but I am sure everyone would love to help keep you going . Bee xx
No Diet Tonic in your neck of the woods either ! What's going on !
I think I will have to add Sugar Free Tonic and some Swedes to this Emergency First Aid Parcel along with the baseball bat and Santa Hat , 2019 is here , I think you might need it! 😁😁
PMR/GCA Overseas Survival Kit heading you way as we speak BRAINS!
Happy New Year and thanks so much for taking care off me , you are a life saver , literally!
Bee xx
( Of course if you look at the first photo of me that I have ever posted on this site , you might just wonder why you put in the effort , I certainly look like a girl whose beyond saving ! )
I can't find diet tonic anywhere in mainland Europe - just Malta which is full of Brits and only M&S sell it even there! Apart from Coke and Pepsi brands it is next to impossible to find low sugar soft drinks here in Italy. Not sure about Austria but the Austrian origin supermarkets here don't have them either.
Have a look for fever tree light tonic on t'internet. I've seen it on a German site.........it's my favourite and doesn't contain any of the dreaded aspartame - also Lidl's do a copy of it in the UK and again no aspartame......perhaps you might find it in Lidl's in Germany.........just a thought.
So sorry to hear about your extremely stressful time. So hard for both of you and also your family. I hope that 2019 will be a healthier and calmer year for you both. When I think how helpful and knowledgable you are, and always there for all of us, I wish there was more we could do for you.
What can I add? Really rotten luck, but at least you avoided all the rubbish rituals. Bah too. In the chaos at my house today, for first time, I can’t remember if I took my pred!!! Guess I’ll find out tomorrow 🙄
Sometimes life can be so cruel! You give so much of you time and energy to helping others it just doesn’t seem fair. I do hope circumstances do an about turn in 2019. Take care - Marea
“When life hands you lemons break out the Tequila”
Geez....what an awful time for your OH, and you, over the holidays. Sounds like it’s not the first time either. Sure hope he will be ok! How scary!
I myself prefer New Years Eve (and dancing if possible) over Christmas, but now that there’s two little ones, I have to admit Christmas was more enjoyable this year.
Here’s hoping your OH has a quick and thorough recovery, and his mood improves accordingly.
Thanks for taking the time to keep up with our posts during this busy time.
O dear pmrpro, the both of you must have been very worried and sometimes I think it is even harder for the other half. Hopefully the worst is over and we are heading towards spring and may be it will.help recovery. 🍀
Adding my very best wishes and commiserations to you and David, what a nightmare... hope the pizzeria is open for easy dining when everyone feels like eating again. Kudos for your stoicism and humour - bye bye 2018, hello hopeful 2019 x
So sorry to read all you've been through, and hope you and OH can begin to enjoy some special time with the family. Let us know how you get on, as we are all thinking of you. X
Dear PMRpro- I am so sorry to hear about your family health issues over Christmas. I hope your OH is in better spirits soon and your daughter & her family are also feeling better. But most importantly I hope you get your pies. Better late than never?
Happy New Years to you and Yours! Here’s to a HEALTHY 2019🥂🍻🍷
So sorry to hear you have had such a stressful Christmas and wish you well for a better, healthier 2019. I've come to rely on your timely responses on my relatively short PMR journey - you feel like family. Best wishes to you x
What a stressful time ! So sorry you've had all this agro and hope hubby is on the mend. Do hope too that daughter and family now ok and that you will be able to enjoy some time with them. Thank you for your consistency and care, even when times are difficult for you. We all appreciate you very much and send best wishes for a peaceful and healthier 2019. Best wishes Jackie xx
Oh my ,what an awful time you have had ,All I can say is Roll on next year and let's have a bash at that . New Year New start (again) .Hope hubby is feeling somewhat better and getting the treatment he needs if only for your sake I want to wish you a Happy New Year Without over stressed unproffessional doctors . I understand that they are stressed but they should put a proffessional face on regardless .There is no excuse .Sounds like you both need a rest and quiet time . I hope you get it .
~Sending abundant hugs & "New Year " blessings your way PMRpro and to your very ill OH in the hope life settles to some form of semblance asap ~
Hugs from a very warm Auckland NZ xx
Really sorry to hear about your dreadful few days. I hope 2019 brings better health to both you and your husband. Thank you for all the advice you’ve given here; I’m sure you help many daily. Very best wishes.
Hang on in there PMRpro! You're much loved on this forum. I love the way your sense of humor shines through no matter the ghastly events. Happy New Year to you and your family and to all of us.
All my best wishes to you. PMRpro. With all the people you help, it seems so unfair that you of all people had to go through this during Christmas even if you hate it as much as I do. I have to keep really busy in order to not think about my estranged daughter in the Colombian jungle, but have no strength to be busy.
You at least can have a conversation with your OH when he is in the mood, I can't, mine makes really illogical statements and uses me as his walking dictionary in order to be able to make more silly statements. When friends or old collegues ask him about something re Neurovascular, he is surprisingly coherent ( before sundown), Ay Dios!
Hope life goes smoother soon for you.PMRpro, this whole community needs you.
Bah Humbug is right! So so sorry you have been going through all of this. I always say my favorite day of the year is the day AFTER Christmas! Sending healing and good disposition thoughts to OH and take care with those Blades!!! 2019 will be better!!
I’m so sorry to read that you and your family have had such a dreadful time this Christmas . I do hope 2019 is a better year for you . Like everyone, I am so very grateful for all your knowledgable posts and words of advice . I’m a relatively new PMR sufferer ( although I am still being tested for other things) and you have helped me massively on what continues to be a very lonely and scary journey at times. Many thanks also to other people who have given me advice and support. Wishing you all a healthy 2019 .
Oh dear - sorry about your Christmas. I do hope your OH is on the mend, and I hope you have a lovely time with your daughter and family over new year. Here's hoping for a better 2019 for everyone!
Hi Linda,Thanks for asking about my family members who were ill over Christmas,l am pleased to say that they are OK now.l am pleased that Christmas is over ,it seems l am not the only one.l think it is too commercialised but of course children love it !l am looking forward to the new year when l can get on with my craft projects and painting again .l hope that you will find your health improves in the new year,you have been going through so much,take care dear Linda,l think about you a lot,much love Patricia xxx for Joey xx
Oh dear, what a tale of woe! No wonder you have had a miserable Xmas. I do hope things improve - forward would be good but sideways per MB might be manageable. Very best wishes.
Difficult and stressful situation. Further exacerbated by family illness. Was with friends, their family travelled over to France with appalling colds *and Camembert to be baked...! TG no illness from the baked Camembert. (Not my fave cheese, but baked is acceptable)! But mine hostess is now down with a vile cold and bad chest. So far, have escaped... Safe home, no sign of C'mas in sight...!!
Get well soon over there in another part of the EU - keep right on gal. Soon be over and behind one. Take care -
Hi
I really hope you have a better , healthier 2019, love and hugs Lynne xxxx
No, as far as I can see it is a standard dosage. My husband is intending going back to warfarin - says he can't trust this stuff now... There is no monitoring, you have no image of what is going on - and as the charming surgeon said the first time round: If you you hadn't dropped the dose for a few days, you'd be dead. Once amonth blood test or dead?????? No contest...
I titrate myself as necessary. Take 5 x 3 mg, and 2 x 3 mg. Tablets are 2 mg, so easy to balance, titrate as and when necessary.
I do not trust the newer anticoagulants. Yes, 'can' be a bit of a bind if have kidney problems, so keep a check there. Albumin/urine test etc.
Half life is 4 days - though have recently claimed is 36 hours. Easy to check.
So far have not cut myself... <smile>
G&T - can thoroughly recommend the Fever Tree tonics, there are 4 varieties. Does contain a spot of sugar, but sugar better than aspartame ! The Indian Tonic one is delicious (perhaps not available in Italy ?)
The Fever Tree tonics can be found here but I don't like the taste as much as diet (I know I'm strange).
Half life of what is 36 hours? And they check renal function - but it is obviously not enough. We did refuse the NOACs for a long time - I had no choice in the end but he'd never had problems with warfarin.
36 hours = half life of Warfarin - this according to one claim I fell over. Otherwise, believe (from PubMed etc), and from my own hospitalised care, it is 4 days. Is there a 'definitive' in half life claims ? Possibly not !
I refused the NOACS - Warfarin can be easily controlled, one knows where one is, NOACS ? Ho-Hum.
A better year ahead for you and your husband. Stress is a bit of a horror to contain - reduce stress levels. It sounds as though he is frightened and refuses to admit ? Comfort and hand holding - more strength to you. You are pretty amazing and very much respected.
Take care - Best for the New Year to you and to yours, family and friends.
He was hatching a chest infection - has started on his reserve abx and is much more civilised today! And even eating! Me? Not a hand holder I fear - been there, done that and burn-out a long time ago ...
Ohhhh, sheesh - right, forget the cool stuff - have a G&T - eat the mince pie with cream and brandy sauce (or whatever) and wash down with ...a (another) G&T. Or, you could throw the bloody mince pie at the wall...and just give full attention to the G&T !
Take care, A Happy New Year - and again, Bonne Sante for 2019 - Cheers...
Really sorry to read all this PMRPro. Somehow you seem above all the cr*p and muddle of life and during the year it often feels that you and DorsetLady are in some magic way immune from all the confusion that surrounds the rest of us, and have reached a point where you have all the answers.
I still think you two have all the answers! but I am sorry to hear you are not immune from the chaos and have had such a rotten time. Best wishes to you, your husband, and your daughter and family in the hopes that Hogmanay proves much smoother for you all than Christmas did x
Dear PMRpro, wow, what a stinker of a Christmas and here you were still able to help me when I posted!!! I know you will ride this storm and bounce back but I wanted to send you all my love and best wishes to say I hope that your family will nurture and look after you and cook and let you get some R&R with the OH. Boy you deserve it after the year you have had. A huge wave of love coming right at you from the friendly north of England. FoD xxx
Oh dear! Sending wishes for a speedy recovery and an end to pain and grumpiness to your OH. And for you I wish wonderful food, good company and a pleasant New Year with family!
So sorry to read all about your December, glad you've made it back out to the world at large. It makes my problems shrink, though suffering from all sorts of new issues which I'm told are not PMR because they're not Hip or shoulder muscles. But I note I'm taking Apixaban, looked up the connections and I realise I need to be careful.
I dropped three tablets Oct. after seeing our TOP Rheumy with great pleasure: Omeprazole, Alendronic Acid & Diffundox. Then started Neck pains, leading to back & hip. This then developed into Itching and lower back pains. Raised my Pred. by 1mg to 7 to help Christmas and see if that helped. Getting lost and working with Chiropractor, with some success. Back to my Doctor to review Blood tests, but looking on the screen they seem normal.
What can I say? poor you and there was me feeling sorry for myself. I always say the answer to self pity is gratitude.
I was smugly boasting about my suite on the QE2 with the champagne on ice and fawned over by two butlers.
That was the first day and it was downhill thereafter. Force 7 gales and 20mph waves, impossible to get out of bed safely and marooned in the suite. A couple of days improvement and then on Boxing Day, turned over in bed, overbalanced fell out of bed smashing head on the bedside cupboard handle causing a
massive arterial bleed worthy of a clip from CSI
Very deep 5cm gash needing sutures.
A bright young thing put it 4 where I would have used 5 resulting in more bleeding for 3 hours until I stopped it with the spray dressing.
I am now sporting a shaved head with bright blue too long nylon sticking out of my head.
It cost $420 and himself was saying the NHSpays him £40 for minor surgery.
We are not going on another cruise at least for a long time,I need to be fitter
My legs are screamingly bad anyway and I am looking forward to the Hydrotherapy on Thursday
In The meantime ,I do hope that your OH is recovering, you could have done without disgusting treatment as well.
Makes my sliced finger look quite tame! Though it did bleed a fair bit and now it is healing looks quite impressive - for a finger So in future when you go away you'lll be taking a A&E emergency bag with you??????????/
In fairness, we have both forgiven the snappy surgeon as he did turn out to be on the ball afterwards and we were assured the lady surgeon was like that to everyone so we didn't feel singled out!!! The nurse said that it passes over the heads of almost all the patients - they don't get many like us (probably just as well...).
If we fly we would have to sort out needles but cancelled Tenerife at the end of January and nothing until May, when ever the optimist I will be better.
Suppose we can forgive the medic, we both know it’s not easy to be perfect all the time and at least he came good in the end.
Sounds as though OH is on the mend, they don’t make good patients.
Mine has escaped to the Out of Hours, it’s a change from my
moaning and the patients are grateful.
Sorry about the finger, my head is pain free but fingers can take ages.
Oh dear, so sorry about all that. The only thing I can say is that I hope everyone is better now and that you are ready for a MUCH better 2019. All the very best. x
Only just reading this as I’ve been quiet on here too - family from Oz from 12/12 to 5/1 OH in hospital 12/12 with urinary sepsis - sent home too soon - back in 48 hours later with Pancreatitis....... I hope all is much quieter for you now and you and OH okay? Illness takes no holidays only prisoners! Best wishes for a healthier new year.
Seems something of a theme going on here eh? We'd had an episode in June/July too. After this I may have fewer arguments with himself about being firm with the GP though! She admitted the signs were all there - and gave him everything he asked for! Suspect his shopping list should have been a bit longer though while she was in the mood
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