I have been slowly tapering to 9 mgms but the last week or so has been very bad. Yesterday I was in screaming pain in my hips and legs although the rest of me was absolutely fine in fact I felt well.
I decided I should stop the tapering and stay at 10 until after I go on the cruise on Monday. I have always taken the roofs as son as I wake up usually in the dark, today it was late and therefore light. I took what I thought were 2 fives only to find they were 2 and a half. I must have taken the wrong dose several times, they have changed the colour of the packing and having been on them nearly five years I have obviously become blasé and careless. I have no idea when it went wrong as the problem is I have spare supplies of everything.
I have put myself back on 10mgms and wonder if that’s enough.
I am seeing the Rheumatologist tomorrow and I am already in disgrace as I defied him over taking the Azathiaprin
I was going to take him a nice bottle of Tatinger, maybe I should make that 2
Ashamed and embarrassed 🥂🥂
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EdithWales
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Thanks scats. What a total fool I am but it’s a relief to know the probable cause. Spent yesterday fighting for the trolley in Tescos with himself and arthritic knee as we both use it as a zimmer
For some time now and certainly since the arrival of this PMR thingy, I have been asking family to buy me one of those small supermarket trolleys for Christmas. It would open up a whole new life - thundering through the village, 2 small dogs happily sitting on board. Maybe this year ........................... ?
Hope you soon feel better - do you have to tell the Rheumatologist what you did? Or get in sharpish and rebuke him (kindly of course) about the change of colours in packaging, playing heavily on the "I'm 78 next week you know" card. Might work. Merry whatsit.
Thank you. The trolleys have multiple uses hence why the supermarkets have them locked. I suspect your dogs would love it.
I am not afraid of Braveheart, the dose error is nothing compared to o defying him over starting the Asothiaprine, that’s the tricky one. My husband comes with me but he always walks in late and
they then have sage discussions about my blood results.
The smart move might be to give him the champagne first and I can wax lyrical about the bouquet before I have to confess and himself may have emerged.
Now, here's a tip for those interested. My local Morrisons doesn't lock it's trolleys anymore. That's the good news. Unfortunately said local Morrisons is a long way away from me (certainly a car ride) so even if I managed to get myself there, I fear the long push back home would be just too much. Curses.
Look forward to hearing about your visit to Braveheart.
There’s no need to drink other’s supply of wine thank you, I’m going to son’s for Xmas and intend to have my own share 🥂🥂😊
Hopefully 10mg will get you back on track, but get yourself a dosette box for the new year, and do as Angela and many others (inc me) and sort your tablets on the weekend when you can have 10mins peace and concentrate.
Thank you. I think the wine comment was for Angela, she is off it so I am doing her a favour. I know you can look after yourself!
I wondered about the box and taking the pills out of the foil but if you are all up to it I will have a go. Save me fiddling around in the night, dropping them on the bathroom floor muttering mild obscenities Just make sure you have a fantastic time
I'm sure everyone has done it at least once for some reason or another! Yet another reason for a multi-day dosette box. Which you sit down and fill with no distractions to encourage errors...
OH gets the shopping trolley - drives me nuts as he crawls around the shop. I like to be in and out in the shortest possible time...
Just got back from lunch with friends, I nearly cancelled but guess what ? the correct dose of roids worked and other than a bit of backache I am fine.
Himself is very relieved because he has borne the brunt of this with him neglecting me and saying I have been misdiagnosed. All the time I have not been having the right dose. I have no way of knowing how long this has been going on but certainly in the last week I have been taking 5 instead of 10
I have just recieved my latest lot of 5mg pred. For some reason thy send 100 tablets when I order even tho they usually come in boxes of 28. This time I have 3 bottles each of 28 and a yellow packet of the remainder. My existing tablets are in a pink box, the yellow box normally contains 2.5 mg.
I used to organise all my mum's tabs but if not in their orrigional packaging hospitals and care homes won't use them. I had a desperate time the last afternoon before a bank hol weekend trying to get her new tablets before she went into care.
Have a great holiday, I have never taken too little but several times taken 5's instead of 1's and gone a bit manic in the afternoons. Weird little pills.
I messed up my prednisone too and I decided to mark on the top; P5 for 5mg and P10 for 10mg, P20 for 20mg and so on. I used a black permanent marker and have had no mess ups since. Have a wonderful time on the cruise. I do want to say that this time of year is stressful anyways, but having GCA/PMR this year has made it so much worse. I started having a flare just before Thanksgiving and had to go back to 20mg from 10mg. We need to protect ourselves from stress if at all possible.
Hi. I sympathise, hell of a pain, hope you can stay on 10 mg, for 2 weeks, and come down by a half tablet for another 2 wks, then depending how you feel try a drop of 1mg, until you come to your usual level. It really is trial,and error,
doctors do not seem to Know, what to advise, and we all should be monitored on a monthly basis. enjoy your cruise. simfonia 55
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