I was on 15 mg of Pred for PMR for just over 3 weeks, told to reduce to 12.5mg and felt very ill again. Checked with GP and went back to 15 mg until saw Rheumy. Still felt unwell with increasing headache behind right ear, scalp tenderness. Rheumy diagnosed GCA and put me onto 40mg. I was concerned about the tapering schedule (40-30-20-15-12.5-10-1etc) and asked if the patient could taper more slowly. He said there are risks with patients tapering slowly, "you are allowed to feel ill for 5 days, then if no better go back to previous dose for another month". Perhaps he meant I should put up with the PMR aches and pains but my question is this: if "feeling ill" also includes an increasing head pain and scalp tenderness is this not dangerous? I think I would be afraid that I am at risk if I lived with that for 5 days. If the head pain comes back shouldn't we react more quickly?