Last few days!: For some reason I managed to get... - PMRGCAuk

PMRGCAuk

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Last few days!

JulianJ
JulianJ

For some reason I managed to get this taper to end mid week.

Because of that I'll be sitting on 6 for a few days before starting the next run, 6 - 5.5 using DL's simple taper.

A nice stock of 1mg's and 2.5mg's, I think I have enough for 2 cycles, all depends on how I react to the reduction.

Good luck to all those tapering and I hope you complete your current taper with no issues

25 Replies

Good luck with this JulianJ. I have found this stage tough and keep retreating.

It's my second time at 6mg, but this time I'm using DSNS and going to try DL's simple taper, with the option to switch back if needed or even a holiday for a week or two.

HeronNS
HeronNS in reply to JulianJ

How can you do DSNS and simple taper at the same time????

JulianJ
JulianJ in reply to HeronNS

I don't. I'm on DSNS now and will be going to the simple taper when I start my next taper. If it goes awry, I'll find a spot in DSNS and start from there again.

HeronNS
HeronNS in reply to JulianJ

Okay. I knew it had to be something like that, but was a bit confused. 🤔

JulianJ
JulianJ in reply to HeronNS

I think we are all confused, just blame the pred ;)

Hi

Good luck

I find I have to stay at one reduction dose for two weeks before attempting to reduce again.

Thank goodness for Dead Slow and Stop

Best Wishes

Longtimer
Longtimer in reply to Rose54

Me at least a month!......

Rose54
Rose54 in reply to Longtimer

Yes sometimes I have had a month in-between just go on how I feel

JulianJ
JulianJ in reply to Rose54

I have taken a few holidays, but am going to try to go straight to the next taper, adding a few days holiday, just to start the week on a Sunday.

Rose54
Rose54 in reply to JulianJ

I find I have to also consider my job, so often start reduction on a Friday so have a easy weekend .

We all have different ways important that what ever we do it works for us .

JulianJ
JulianJ in reply to Rose54

I like the Sunday start, well really it's a Monday start as I take coated pred in the evening. So far it's worked for me, I haven't had a bad start yet, maybe bad days during, but that's normal as we adjust. As you say, it's what works for us.

I am also following DL’s pattern of reduction now and I am finally at 6 too after failure at the last 2 attempts using my Rheumy’s pattern. He said last week if it works, continue. So I will be following your progress over the next few months and hopefully will be travelling on the same road. I am taking Methetraxite as I am apparently “steroid resistant” so I am hoping to get to Club Zero by the end of the year. My next Rheumy appointment is in November, my 3 year anniversary of being struck by PMR.

I was diagnosed in January 2016 and my Rheumy suggested this site at my first visit. I have been following everyone’s progress since then but this is my first entry as I seem to have finally found someone at the same place in our journey through the quagmire of PMR. I have been in some very dark places in the last couple of years and would not have managed without the constant help, advice, tears and laughter that all of you have given me by writings on this forum. A huge thank you to you all.

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to Jansy62

Glad it’s working at the moment, but please don’t get too fixated on finishing by Christmas. If you have that in mind all the time you are putting yourself under stress, just go along day by day. A cliche I know, but true! Unfortunately it’s not you or your Rheumy that decides how long your PMR will last, it’s the PMR itself!

Good luck with your continuing success.

Jansy62
Jansy62 in reply to DorsetLady

Thank you DL for that timely reminder. It is so difficult to understand that this PMR has a mind of it’s own and we just have to take that daily mantra, one day at a time, seriously. I wouldn’t have managed to get to this point without your wise comments for us all. A sincere and heartfelt thank you.

JulianJ
JulianJ in reply to Jansy62

One thing I have learnt is to ignore any dates, you never know what's going to happen. I was at 6mg in Dec 2017 and a flare put me back to 9mg. Since then I've been on the DSNS taper with a couple of short holidays.

We are all in much the same place, all heading to the lowest dose we can manage, club zero would be great, but it it's not for me, so be it.

The aunties do give some great advice and the rest of us do talk about our experiances.

Feel free to comment on any of my posts, they are meant to engage with other members even if it is an a funny way. We can feel down at times and a post on here can certainly build you up again.

Good lick with yout taper :)

Hidden
Hidden

Good luck Julian! My fingers and toes are crossed for you!!!!

PMRpro
PMRproAmbassador in reply to Hidden

You'll fall over again...

Hidden
Hidden in reply to PMRpro

Okay... that made me laugh out loud!!!!! Good thing, tea was finished!

You are just killin it PMRpro!!!!!

JulianJ
JulianJ in reply to Hidden

I can do the first, but not the latter :)

And thanks, I'm sure it will all be good and if it isn't, well back to DSNS

Hidden
Hidden in reply to JulianJ

Me neither... I just wanted you to know I was behind you 100%, but in reality, I guess it's only 50%. : ]

JulianJ
JulianJ in reply to Hidden

It's the thought isn't it and anyway I wouldn't want to have you falling over as PMRpro says ;)

Hidden
Hidden in reply to JulianJ

Yes, it is the thought that counts... and thank you! I cant take many more falls!!!!!

Good luck Julian 🍀

JulianJ
JulianJ in reply to Footfairy-1

Thanks :)

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