My calendar pops up in the corner of the screen to tell me that today I have an appointment for Zoldronic infusion, then in big friendly letters it says CANCELLED !
It was a stressful decision but one I am now relieved that I made.
A year ago my mother was dying , I had to ask for her feed pipe to be removed and watch her slowly deteriorate. I was in pain from a hip replacement, I didn't need the agro of arguing with my GP, I did what I was told.
All through autumn and winter I was in a lot of pain from the operation along with sciatica and PMR flare. It took 20mg of pred to ease things, more than the initial 15 needed. It also took several visits to a selection of GPs to convince them that the pain was real and needed dealing with, they seem to think if we just gave it a bit longer..... They weren't living it. I believe the prolonged pain in my leg was a result of the ZA. Bone pain is listed as a side effect .
One year on and there are new stresses and I'm glad I don't have to make the decision now. My son and his partner are separating and it involves children,house and business. Pain stress and expense. What retirement fund?
I have cataracts in both eyes. ( PRED!) I was referred to the eye hospital. Pre-op showed I had high BP (PRED?) so op. postponed. BP treated but GP forgot to refer me back to hospital Ahhhhhhh! Now at last have new appointment on Thursday. By now my vision is so poor that reading normal print is often impossible. Using my sewing machine - out of the question.
PMRpro always says that if PMR teaches you one thing it's patience. I thought I was doing quite well. I don't garden I potter. I don't wander the countryside I stay in more and read and sew.....
Thank goodness for the computer where I can increase size and contrast of printing. And thank goodness for this forum where I can let off steam to people who understand.
Whaw, that's better now I'm off for a cup of chamomile tea.
Thanks for 'listening'