I hope someone can give me advice on is in the same boat. Dec2017 diagnosed PMR at emerg. Given 15 mg prednisone and told when I see my dr he will tell me how to taper in about a week. Long story short stayed on 15/day then in feb he was away and I had a flare. Dr filling in put me up to 20. Oh, btw my dr is new
Young, and unfamiliar with all this. He returned in beginning of march and told me to stY on 15 mg for rest of march. Now, that's 3 months of what should have been a few weeks. I'm now at 30 days tapering at 14 mg. had the worst night ever last night...sweats that smelled of chemicals, soaked to the skin, today I'm puffed right up and flushed and upper body swollen. I might feel a bit feverish. Tomorrow I thought I'd now try 13.5 mg. I'm also type 1 diabetic, thyroid probs, and other complications. I don't have a rheumatologist as new dr said he knew what to do......he looked it up. I can't see him till my next monthly appt second week in July. I'm quite worried 😩 I don't know what to do and nobody to guide me. I live in a small town and only this gp is here. Can't even see him. Last time I tapered I had a real difficult time so only did .5 which wasn't bad. I feel I've been on this prednisone too long and too much of it. Can anybody relate to this? I'm so nervous. Thank you so much.
Best of wishes