Hello ronzy It’s good to hear from you although the news is not good. I thought you’d joined the world of the well.
I wonder what’s brought this on? Do you have any idea? Have you been overdoing it or stressing over something?
You aren’t going on a bit, you are clearly worried. The doctor’s upped your dose and you are going to have your blood tested. Although the Pred will be keeping some of the inflammation down, so it might not tell your doctor much. It does sound like a flare with all the stiffness and pain and there’s only one thing to do with a flare. You may have to up your dose until the pain and stiffness settles. Let us know how you go. Hope it’s sorted really soon.
Hi, Ronzy! I echo Sheffieldjane in that it’s nice to see you again but not so nice that you are struggling. You haven't been playing with lampshades, have you? Or having too much fun with hats? Let’s hope if it is a flare, it’s just a little one. But you are a bit of a pro in this having had PMR for awhile and being successful at getting to 3 mg. If you have to increase a bit, at least it will get rid of the pain and stiffness. And you will get back to 3mg sometime soon. Try not to worry as you know that won’t help. Hang out here with your friends — I’m sure there will be plenty of people that would like to say hi again to you
Never mind owt else - pred is your owt else. And that is such a low dose, even the 5mg, that it really isn't a problem.
There is some thought that the activity of the underlying cause of PMR "cycles", it goes up and down, especially I suspect as it is heading for burning out. If you get lower while it is in a quiet patch and then it wakes up again, this is what tends to happen, you need to go back a bit. It isn't the end of the world and you will get lower again later.
Yes looks like a bit of a flare Ronzy and that you'll have to go up a bit. You'll get there !! Hope all goes well with GP and blood test. Let us know how you get on.
I'm so sorry to hear you're having a flare, or setback of some kind... that stinks! I will keep my fingers crossed that it is only a minor glitch in the matrix and you are back to your old self soon!
Isn't 2.30am the time that the cytokines are released into the bloodstream? I think I'd have been upping my dose at that time. Hope you get pain free soon.x
Didn’t you say your docs were pushing you to reduce faster? Their fault! Had you stayed at 4mg you’d likely have been fine. They just don’t seem to understand that their gung-ho reductions result in higher doses, and pain for US!
Half or quarter reductions from now I would suggest.
Hi Ronzy. I've been on prednisone for 4 years and haven't made it lower than 10 mg due to a few flares. I started at 40 mg. Personally I'd be ecstatic to be down to 5 mg.
I'm sure you'll be hearing from others who have been on it longer than 5 years.
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