Itching Legs: Almost certainly not related to PMR... - PMRGCAuk

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Itching Legs

birdwatcher profile image
28 Replies

Almost certainly not related to PMR, but I just thought I would ask if any of you good people could help.

Does anybody have any useful advice about the cause or what I can do about my itchy legs. The itching drives me mad, particularly at night. I’ve tried several creams of all kinds but nothing seems to work. I read this morning online that a VIT D supplement may help.

Do any of you good folks have any suggestions or advice.

Thanks, Ron.

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birdwatcher
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28 Replies
CT-5012 profile image
CT-5012

Me too, put Prednisone itchy skin into the search thing at the top of this page lots of information there. What works for me is a very mild unperfumed shower gel and lots of moisturiser you could also try an antihistamine pill so long as it doesn’t affect anything else you’re taking. Good luck.

birdwatcher profile image
birdwatcher in reply to CT-5012

Thanks CT.

Celtic profile image
CelticPMRGCAuk volunteer

Ron, I have experienced something similar on a few occasions - not much fun when it keeps you awake in the middle of the night! On one occasion, when it was affecting me all over, a skin biopsy pointed to it being an allergic reaction to a blood pressure drug. But I also have kidney disease so an added possible culprit for me. Have you started any new medication lately? Or even added anything different to your diet?

In the legs, a possible cause can me connected to veins, especially varicose ones.

Have you had your blood sugar levels checked recently? Diabetes can be a possible cause.

In the past, we have even heard of people experiencing itching after starting Pred. Washing off the coating in the case of enteric-coated Pred has resolved the problem.

Showering with Dermol was my GP’s suggestion plus applying it to the skin afterwards has helped.

A few things there for you to consider, Ron, and to get checked out with your GP. Hope you get to the bottom of it soon.

birdwatcher profile image
birdwatcher in reply to Celtic

Thankyou Celtic for all your suggestions. It’s strange I’ve had the condition for some years and it can occur at any time of year. About 10 years ago I went to see a consultant he took a biopsy and diagnosed a form of eczema or dermatitis and gave me a strong steroid cream. A cold shower also helps but that is drastic at 3 in the morning. If it doesn’t clear in the next few days I will go to the GP again. Without confidence though.

Thanks again. Ron.

Celtic profile image
CelticPMRGCAuk volunteer in reply to birdwatcher

Then if it has been a long term, on-and-off condition and a skin biopsy has resulted in a diagnosis of eczema. you already have your answer as to what it is. In my search for lotions and potions that work before my skin biopsy revealed the culprit, I came across a product called Child's Farm baby moisturiser for sensitive, eczema-prone skin. Boots and Superdrug stock it although Boots were out-of-stock at the time and ordered it in for me. Whilst doing the transaction, a lady overheard the conversation and said it was the only product that worked for her daughter's eczema. I also saw this moisturiser highly recommended in an article in the press. There is also a non-baby formula, I believe, but I stuck to the baby one as that was the one I had read about. Worth a try for you perhaps, Ron.

birdwatcher profile image
birdwatcher in reply to Celtic

Thanks Celtic I’ll try the moisturiser you mention.

in reply to birdwatcher

Bucket of cold water and a towel near the bed? Obviously not too near the bed...dont want to hear you ended up headfirst into it. I have done this myself as I have neuropathy and hanging feet over tbe side of the bed into water helps when it gets bad.

birdwatcher profile image
birdwatcher in reply to

Hi Poopadoop,

Funny you should say that, I did read somewhere, a couple of years ago I’m the web that cold water can relieve the real bad itching, and I have to say that it has worked from time to time. I nearly jumped in the shower last night as it was really driving me nuts, but I didn’t want to wake my wife. I just used a cold flannel.

Thanks for your concern and info. R.

yogabonnie profile image
yogabonnie

Probably could use Vit D if you are not taking it already.. and I find an epsom salts bath helps.. and when showering turn down the hot water. When you get out immediately put on cream of some kind.

birdwatcher profile image
birdwatcher

Thanks Bonnie, I’m taking vit D, I’ll look into the Epsom salts in the bath though. Thanks. R.

SheffieldJane profile image
SheffieldJane

I wondered if you were on any painkillers? I was prescribed Tramadol before I got my PMR diagnosis and experienced deep itching, even on my face - no rash.

Zofitmogelijk profile image
Zofitmogelijk

Hi Ron, and on top of all the Good advices you already got; I have those itches from time to time and found out that it helps to wash my clothes and Bedlinen with the detergent Neutral worth a try?

birdwatcher profile image
birdwatcher in reply to Zofitmogelijk

Hi Zofitmogelijk,

Certainly is worth thinking about. Thanks.

CT-5012 profile image
CT-5012 in reply to birdwatcher

One of my sons has eczema and washing his clothes in any of the biological detergents make it much worse.

PMRpro profile image
PMRproAmbassador in reply to CT-5012

Yes - most of my family needs the non-bio stuff. Luckily it doesn't bother me but I have only ever used Persil liquid since the girls were born - but even then the "new improved" stuff can cause a wobble now and again...

Fabric conditioner is a no-no too. Saves a fortune mind!!!

Celebrant profile image
Celebrant in reply to PMRpro

Big no to any fabric softner--use felt balls

stellafmdm profile image
stellafmdm

Hi Birdwatcher, I have buzzing legs rather than itching and find that taking a magnesium supplement helps this. Maybe it would work for itching too?

birdwatcher profile image
birdwatcher in reply to stellafmdm

Thanks Stella, Thanks for that. Was you magnesium defficient before.

stellafmdm profile image
stellafmdm in reply to birdwatcher

I think I must have been but without realizing it! The buzzing legs drew my attention so I looked for remedies.

Maggieluff profile image
Maggieluff

I get the burning in legs then the itching starts scratch them till they bleed some times think it is something to do with the nerve endings x

birdwatcher profile image
birdwatcher in reply to Maggieluff

Ooh Maggie that sounds nasty. If my legs itch the absolute worse thing for me to do is scratch them, even to touch them raises a rash. The only thing that sorts that out is a strong prescribed steroid cream.

I know it’s hard not to scratch, but try to avoid it and be careful to avoid infection. Thanks Maggie.

Polywotsit profile image
PolywotsitPMRGCAuk team member

I have an itch problem in a very private place. It can keep me awake at night. I don't normally say anything about commercial products on this forum. But. I have found BioOil to be a lifesaver. I smoothe it into the skin after washing, and reduce the steroid cream from once a day to once a week.

birdwatcher profile image
birdwatcher in reply to Polywotsit

Thanks for that Kate, is that available from Boots and such?

I used aloe Vera last night and managed a good nights sleep.

I hope you get some good sleep now. I know it’s so annoying.

Thanks for you info. Ron.

Polywotsit profile image
PolywotsitPMRGCAuk team member

Yes it is. Costs around £11 but you only need a drop. Aloe vera gel is good stuff too!

1brian profile image
1brian

Hi there, I have lots of itches which move around from place to place but particularly crotch and lower legs.I have found recently that vaseline has more or less done the trick.

Topps profile image
Topps

Hi. I have burning toes and heels that are spreading up the leg, but it all started with the type of itching you mentioned. The dermatologist said I should moisturise and after half an hour put a cream on she prescribed called CAPSAICIN and this keeps it fairly well under control.

Not the same as yours now but it was, so good luck, I a. Going to take up some of Celtics suggestions.

birdwatcher profile image
birdwatcher in reply to Topps

I do listen to all the suggestions and I have tried some of the ones mentioned here. The condition does seem to come and go though.

For an immediate relief though the only thing that has worked for me ( and I know this is tough) is to shower the immediate area with cold cold water. Then to apply the creams and moisturiser of choice. If I caused a rash by rubbing or scratching I was prescribed a steroid cream. However I would strongly advise not scratching as this always makes things 10 times worse.

Good luck. R.

gtate1914 profile image
gtate1914

My legs have recently started to burn and itch, I rubbed in coconut oil laced with eucalyptus, lavender, and lemongrass oil. Seems to work.

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