I have not posted for a while,but just quick update,I was diagnosed with gca Jan 2017, started with 60mg of pred. It was 6 wks before my daughters wedding,it went so well. Then the struggle began reducing steroids which was a battle itself, hospital appointments blood tests, bone scan etc and the fatigue was unbelievable.trying to stay a wake battle in itself. But managed to battle on and it is nice to report from this week I am down to 1mg and got review at doctors next wk to see what medicines I can come off. I take cocktail for my gca but also have heart condition so feel if I walk people can hear me coming as I rattle. For all the people just starting the journey be brave and there is light at end of tunnel.and believe that the journey may be long but one step at a time.