I was diagnosed with GCA in September 2014. From 40 pred initially I am now reducing from 5 to 4 by the dead slow method. I have been down to 4 before then had a flare so up again to 6. My blood tests according to the consultant are “perfect”. I am feeling better than I have for three years but my muscles are very weak andi find it difficult to walk far or at all without a stick. Does anyone have experience of coming off pred completely? Would it work better to come down by half a mg at a time? Has anyone had experience of effective rehab? I have kept walking and doing pilates throughout the three years but never seem to get stronger.
I have been so grateful for all the helpful advice I have got through this site. Thank you to everyone who has replied to my queries.