Zero Prednisolone : Hi everyone, thought it was... - PMRGCAuk

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Zero Prednisolone

PJPS
PJPS
β€’60 Replies

Hi everyone, thought it was about time I write a post about club zero. I used the really slow reduction method and I have been steroid free since the beginning of October this year.

I still feel a bit stiff sometimes but nothing like I've experienced in the past. I have also lost all of the excess weight and walk regularly every day for at least half an hour.

I am slightly anaemic just now but Dr is not worried, I will have another blood test to keep an eye on it next month.

Not celebrating at the moment as its early days and I believe it can take quite a few months for the body to recover.

This forum is a fantastic support and I learn so much from it.

Best wishes to everyone and especially to those at the start of this long journey.

Try to stay positive, you are not alone and thank you to everyone who takes the time to post.

60 Replies
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Hidden
Hidden

Really pleased for you and keeping fingers crossed πŸ‘πŸ‘

2 likes
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PJPS
PJPS
in reply to Hidden

Thank you very much

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Hollyseden

Great news. Lovely to hear a success story. Merry Christmas!

2 likes
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PJPS
PJPS
in reply to Hollyseden

Thank you, Merry Christmas to you too

1 like
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markbenjamin57

Greetings PJPS :-)

Thanks for your Post - always good to hear from someone who has seen the light at the end of the PMR / GCA Tunnel!

As you suggest, nothing is guaranteed as regards the future prospects - and the 'Curse' of PMR and GCA can always return. But it's inspiring to hear stories from those of Us Lot who are for now, at least, returning to Business as Usual. Me too soon, hopefully..

Thanks also for your endorsement of this forum. I agree, it's a terrific and very caring community for PMR / GCA 'Survivors' - as I well-know.

'You are Not Alone'- well said! :-)

Best wishes and please keep us posted...

MB :-)

6 likes
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PJPS
PJPS
in reply to markbenjamin57

Thank you , best wishes to you

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Pastit

Congratulations and well done ☺️

Pete (PJCS) πŸ€—πŸ˜‰

1 like
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PJPS
PJPS
in reply to Pastit

Thanks Pete

1 like
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SheffieldJane

Well done PJPS. I hope PMR recedes like a bad dream. Thanks for your cheering post. Happy Christmas and a wonderful New Year!

1 like
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PJPS
PJPS
in reply to SheffieldJane

Thank you so much, Merry Christmas to you too

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DorsetLady
DorsetLadyPMRGCAuk volunteer

Hi PJPS,

Welcome to the club (one that we do all want to be in). I’m about a year ahead of you, and yes it does take some time for everything to get back to normal.

The feeling is great when you can finally get rid of those last few tablets because a) they’re out of date and b) you don’t need them anymore!

Good healthπŸ˜€

4 likes
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powerwalk

oh another one off the pred. Thats great. And something to hopefully look forward to.

1 like
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PJPS
PJPS
in reply to powerwalk

Thank you

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PJPS
PJPS
in reply to DorsetLady

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

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PJPS
PJPS
in reply to DorsetLady

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

1 like
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Soraya_PMR

Oh well done! (Little bit jealous πŸ˜‰)

Be kind to yourself, take it easy, and have a fabulous Christmas.

2 likes
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PJPS
PJPS
in reply to Soraya_PMR

Hang on in there, Merry Christmas

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Klah

What a joyous thing!! Must feel like a bad dream! Merry ChristmasπŸŽ„

1 like
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PJPS
PJPS
in reply to Klah

Merry Christmas

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Brixhamhampster

PJPS that is a really useful post and allows us to peek at what it would be like at zero. There must be quite a few of us getting quite low and wondering what to expect. Still a while for me but lovely to look forward to the day....

1 like
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PJPS

Wishing you all the best, stay positive.

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sondya

Fantastic, PJPS. I hope to join the club in June next year! Can't wait!!

1 like
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PJPS
PJPS
in reply to sondya

Good luck, best wishes.

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shellykent

Well done. Your post gives hope. Best Christmas present as it shows there is light at the end of the tunnel. Happy Christmas. Fingers crossed.

2 likes
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PJPS
PJPS
in reply to shellykent

Happy Christmas to you too & thanks.

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Hidden
Hidden

Great to hear it's going well for you. It's what we all love to hear. ATB

1 like
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PJPS
PJPS
in reply to Hidden

Thank you.

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Footfairy-1

That's great PJPS. Helps us all to glimps light at the end of a dark tunnel. Wishing you a happy and healthy Christmas and New Year x πŸŽ„β›„οΈβ„οΈπŸŽ†

1 like
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PJPS
PJPS
in reply to Footfairy-1

Merry Christmas to you too.

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allykat

That's really great news. So pleased for you!

1 like
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PJPS
PJPS
in reply to allykat

Thank you.

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York54

Fabulous news PJPS!! Have a great Christmas and a happy and healthy new year!!πŸŽ„πŸŽ„πŸŽ„πŸŽ„πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

1 like
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PJPS
PJPS
in reply to York54

Thanks, Merry Christmas to you too.

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PMRpro
PMRproModerator

Great! Long may it last!

3 likes
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PJPS
PJPS
in reply to PMRpro

Many thanks.

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powerwalk

Well done - sooo good to hear of someone off the pred and doing ok. Good luck.

1 like
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PJPS
PJPS
in reply to powerwalk

Thank you.

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Rokerman

PJPS - Consider this as your Christmas present to yourself! Well done and, as others have said, it’s great encouragement to those of us who (we hope!) are β€˜nearly there’ !

1 like
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PJPS
PJPS
in reply to Rokerman

Thank you and good luck on your journey.

1 like
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Rabbit1951

That gives us all hope. Have. Wonderful Christmas and hope you continue to stay off prednisone

. Cheers xx

1 like
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PJPS
PJPS
in reply to Rabbit1951

Thank you, I'm certainly keeping my fingers crossed. Merry Christmas.

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karools16

Marvellous! Well done!

1 like
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PJPS
PJPS
in reply to karools16

Thank you.

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Longtimer

Congratulations, I just love hearing that it`s possible!

1 like
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PJPS
PJPS
in reply to Longtimer

Thanks, its been a long journey but this forum gives great support on the way.

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Longtimer

Congratulations, I just love hearing that it`s possible!

1 like
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Sandy1947

Congrats! Your story is inspirational to all of us!

1 like
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PJPS
PJPS
in reply to Sandy1947

Thanks, best wishes to you.

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Marilyn1959

PJPS long may you be symptom and pred free! Well done! Have a wonderful Christmas.

1 like
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PJPS
PJPS
in reply to Marilyn1959

Thank you, happy Christmas.

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powerwalk

Can I ask how long you were on the Pred? Thanks

1 like
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PJPS
PJPS
in reply to powerwalk

I was on Pred for almost three years, I had one flare in that time which set me back a bit. I am just so grateful for the support and available information on this forum. I am also lucky to have a good GP. Best wishes to you.

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dartmoorlass

Ditto everything said by all fellow travellers along this bumpy GCA/PM road. Well done - I'm imagining you in my mind's eye, striding out on your daily 30 min walks - so happy for you! It almost seems an anti-climax to wish you a Happy 2018, you've got it already!

Very best wishes and many thanks for sharing your special news with us all.

1 like
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PJPS
PJPS
in reply to dartmoorlass

Thank you for your kind words. I really enjoy my daily walks! All the best to you.

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Insight329

Congratulations! Such wonderful news! And so kind of you to take the time to post and share this uplifting news! Happy Holidays!

1 like
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PJPS
PJPS
in reply to Insight329

Thank you, happy Christmas.

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Merk

Thank you for the encouraging words. Best Wishes to you...

1 like
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PJPS
PJPS
in reply to Merk

Thanks, hope you have a good Christmas

1 like
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casse

Great news! It is always so encouraging to hear success stories. It is a very long long journey. Merry Christmas to youπŸ‘πŸ€—

2 likes
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PJPS
PJPS
in reply to casse

Thank you, Merry Christmas to you too

1 like
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