Zero Prednisolone

[PJPS]

Hi everyone, thought it was about time I write a post about club zero. I used the really slow reduction method and I have been steroid free since the beginning of October this year.

I still feel a bit stiff sometimes but nothing like I've experienced in the past. I have also lost all of the excess weight and walk regularly every day for at least half an hour.

I am slightly anaemic just now but Dr is not worried, I will have another blood test to keep an eye on it next month.

Not celebrating at the moment as its early days and I believe it can take quite a few months for the body to recover.

This forum is a fantastic support and I learn so much from it.

Best wishes to everyone and especially to those at the start of this long journey.

Try to stay positive, you are not alone and thank you to everyone who takes the time to post.

[Hidden]

Really pleased for you and keeping fingers crossed 👍👏

[PJPS in reply to Hidden]

Thank you very much

[Hollyseden]

Great news. Lovely to hear a success story. Merry Christmas!

[PJPS in reply to Hollyseden]

Thank you, Merry Christmas to you too

[markbenjamin57]

Greetings PJPS

Thanks for your Post - always good to hear from someone who has seen the light at the end of the PMR / GCA Tunnel!

As you suggest, nothing is guaranteed as regards the future prospects - and the 'Curse' of PMR and GCA can always return. But it's inspiring to hear stories from those of Us Lot who are for now, at least, returning to Business as Usual. Me too soon, hopefully..

Thanks also for your endorsement of this forum. I agree, it's a terrific and very caring community for PMR / GCA 'Survivors' - as I well-know.

'You are Not Alone'- well said!

Best wishes and please keep us posted...

MB

[PJPS in reply to markbenjamin57]

Thank you , best wishes to you

[Hidden]

Congratulations and well done ☺️

Pete (PJCS) 🤗😉

[PJPS in reply to Hidden]

Thanks Pete

[SheffieldJane]

Well done PJPS. I hope PMR recedes like a bad dream. Thanks for your cheering post. Happy Christmas and a wonderful New Year!

[PJPS in reply to SheffieldJane]

Thank you so much, Merry Christmas to you too

[DorsetLady PMRGCAuk volunteer]

Hi PJPS,

Welcome to the club (one that we do all want to be in). I’m about a year ahead of you, and yes it does take some time for everything to get back to normal.

The feeling is great when you can finally get rid of those last few tablets because a) they’re out of date and b) you don’t need them anymore!

Good health😀

[powerwalk in reply to DorsetLady]

oh another one off the pred. Thats great. And something to hopefully look forward to.

[PJPS in reply to powerwalk]

Thank you

[PJPS in reply to DorsetLady]

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

[PJPS in reply to DorsetLady]

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

[Soraya_PMR]

Oh well done! (Little bit jealous 😉)

Be kind to yourself, take it easy, and have a fabulous Christmas.

[PJPS in reply to Soraya_PMR]

Hang on in there, Merry Christmas

[Klah]

What a joyous thing!! Must feel like a bad dream! Merry Christmas🎄

[PJPS in reply to Klah]

Merry Christmas

[Brixhamhampster]

PJPS that is a really useful post and allows us to peek at what it would be like at zero. There must be quite a few of us getting quite low and wondering what to expect. Still a while for me but lovely to look forward to the day....

[PJPS in reply to Brixhamhampster]

Wishing you all the best, stay positive.

[sondya]

Fantastic, PJPS. I hope to join the club in June next year! Can't wait!!

[PJPS in reply to sondya]

Good luck, best wishes.

[shellykent]

Well done. Your post gives hope. Best Christmas present as it shows there is light at the end of the tunnel. Happy Christmas. Fingers crossed.

[PJPS in reply to shellykent]

Happy Christmas to you too & thanks.

[Hidden]

Great to hear it's going well for you. It's what we all love to hear. ATB

[PJPS in reply to Hidden]

Thank you.

[Footfairy-1]

That's great PJPS. Helps us all to glimps light at the end of a dark tunnel. Wishing you a happy and healthy Christmas and New Year x 🎄⛄️❄️🎆

[PJPS in reply to Footfairy-1]

Merry Christmas to you too.

[allykat]

That's really great news. So pleased for you!

[PJPS in reply to allykat]

Thank you.

[York54]

Fabulous news PJPS!! Have a great Christmas and a happy and healthy new year!!🎄🎄🎄🎄👏👏👏👏👏

[PJPS in reply to York54]

Thanks, Merry Christmas to you too.

[PMRpro Ambassador]

Great! Long may it last!

[PJPS in reply to PMRpro]

Many thanks.

[powerwalk]

Well done - sooo good to hear of someone off the pred and doing ok. Good luck.

[PJPS in reply to powerwalk]

Thank you.

[Rokerman]

PJPS - Consider this as your Christmas present to yourself! Well done and, as others have said, it’s great encouragement to those of us who (we hope!) are ‘nearly there’ !

[PJPS in reply to Rokerman]

Thank you and good luck on your journey.

[Rabbit1951]

That gives us all hope. Have. Wonderful Christmas and hope you continue to stay off prednisone

. Cheers xx

[PJPS in reply to Rabbit1951]

Thank you, I'm certainly keeping my fingers crossed. Merry Christmas.

[karools16]

Marvellous! Well done!

[PJPS in reply to karools16]

Thank you.

[Longtimer]

Congratulations, I just love hearing that it`s possible!

[PJPS in reply to Longtimer]

Thanks, its been a long journey but this forum gives great support on the way.

[Longtimer]

Congratulations, I just love hearing that it`s possible!

[Sandy1947]

Congrats! Your story is inspirational to all of us!

[PJPS in reply to Sandy1947]

Thanks, best wishes to you.

[Marilyn1959]

PJPS long may you be symptom and pred free! Well done! Have a wonderful Christmas.

[PJPS in reply to Marilyn1959]

Thank you, happy Christmas.

[powerwalk]

Can I ask how long you were on the Pred? Thanks

[PJPS in reply to powerwalk]

I was on Pred for almost three years, I had one flare in that time which set me back a bit. I am just so grateful for the support and available information on this forum. I am also lucky to have a good GP. Best wishes to you.

[dartmoorlass]

Ditto everything said by all fellow travellers along this bumpy GCA/PM road. Well done - I'm imagining you in my mind's eye, striding out on your daily 30 min walks - so happy for you! It almost seems an anti-climax to wish you a Happy 2018, you've got it already!

Very best wishes and many thanks for sharing your special news with us all.

[PJPS in reply to dartmoorlass]

Thank you for your kind words. I really enjoy my daily walks! All the best to you.

[Insight329]

Congratulations! Such wonderful news! And so kind of you to take the time to post and share this uplifting news! Happy Holidays!

[PJPS in reply to Insight329]

Thank you, happy Christmas.

[IslandShell]

Thank you for the encouraging words. Best Wishes to you...

[PJPS in reply to IslandShell]

Thanks, hope you have a good Christmas

[casse]

Great news! It is always so encouraging to hear success stories. It is a very long long journey. Merry Christmas to you👍🤗

[PJPS in reply to casse]

Thank you, Merry Christmas to you too