Zero Prednisolone : Hi everyone, thought it was... - PMRGCAuk

PMRGCAuk

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Zero Prednisolone

PJPS profile image
PJPS
β€’60 Replies

Hi everyone, thought it was about time I write a post about club zero. I used the really slow reduction method and I have been steroid free since the beginning of October this year.

I still feel a bit stiff sometimes but nothing like I've experienced in the past. I have also lost all of the excess weight and walk regularly every day for at least half an hour.

I am slightly anaemic just now but Dr is not worried, I will have another blood test to keep an eye on it next month.

Not celebrating at the moment as its early days and I believe it can take quite a few months for the body to recover.

This forum is a fantastic support and I learn so much from it.

Best wishes to everyone and especially to those at the start of this long journey.

Try to stay positive, you are not alone and thank you to everyone who takes the time to post.

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PJPS
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60 Replies
β€’

Really pleased for you and keeping fingers crossed πŸ‘πŸ‘

PJPS profile image
PJPSβ€’ in reply to

Thank you very much

Hollyseden profile image
Hollyseden

Great news. Lovely to hear a success story. Merry Christmas!

PJPS profile image
PJPSβ€’ in reply toHollyseden

Thank you, Merry Christmas to you too

markbenjamin57 profile image
markbenjamin57

Greetings PJPS :-)

Thanks for your Post - always good to hear from someone who has seen the light at the end of the PMR / GCA Tunnel!

As you suggest, nothing is guaranteed as regards the future prospects - and the 'Curse' of PMR and GCA can always return. But it's inspiring to hear stories from those of Us Lot who are for now, at least, returning to Business as Usual. Me too soon, hopefully..

Thanks also for your endorsement of this forum. I agree, it's a terrific and very caring community for PMR / GCA 'Survivors' - as I well-know.

'You are Not Alone'- well said! :-)

Best wishes and please keep us posted...

MB :-)

PJPS profile image
PJPSβ€’ in reply tomarkbenjamin57

Thank you , best wishes to you

Congratulations and well done ☺️

Pete (PJCS) πŸ€—πŸ˜‰

PJPS profile image
PJPSβ€’ in reply to

Thanks Pete

SheffieldJane profile image
SheffieldJane

Well done PJPS. I hope PMR recedes like a bad dream. Thanks for your cheering post. Happy Christmas and a wonderful New Year!

PJPS profile image
PJPSβ€’ in reply toSheffieldJane

Thank you so much, Merry Christmas to you too

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi PJPS,

Welcome to the club (one that we do all want to be in). I’m about a year ahead of you, and yes it does take some time for everything to get back to normal.

The feeling is great when you can finally get rid of those last few tablets because a) they’re out of date and b) you don’t need them anymore!

Good healthπŸ˜€

powerwalk profile image
powerwalkβ€’ in reply toDorsetLady

oh another one off the pred. Thats great. And something to hopefully look forward to.

PJPS profile image
PJPSβ€’ in reply topowerwalk

Thank you

PJPS profile image
PJPSβ€’ in reply toDorsetLady

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

PJPS profile image
PJPSβ€’ in reply toDorsetLady

Thank you DorsetLady, it's good to hear from someone who is further on in their journey, it gives us all hope.

Soraya_PMR profile image
Soraya_PMR

Oh well done! (Little bit jealous πŸ˜‰)

Be kind to yourself, take it easy, and have a fabulous Christmas.

PJPS profile image
PJPSβ€’ in reply toSoraya_PMR

Hang on in there, Merry Christmas

Klah profile image
Klah

What a joyous thing!! Must feel like a bad dream! Merry ChristmasπŸŽ„

PJPS profile image
PJPSβ€’ in reply toKlah

Merry Christmas

Brixhamhampster profile image
Brixhamhampster

PJPS that is a really useful post and allows us to peek at what it would be like at zero. There must be quite a few of us getting quite low and wondering what to expect. Still a while for me but lovely to look forward to the day....

PJPS profile image
PJPSβ€’ in reply toBrixhamhampster

Wishing you all the best, stay positive.

sondya profile image
sondya

Fantastic, PJPS. I hope to join the club in June next year! Can't wait!!

PJPS profile image
PJPSβ€’ in reply tosondya

Good luck, best wishes.

shellykent profile image
shellykent

Well done. Your post gives hope. Best Christmas present as it shows there is light at the end of the tunnel. Happy Christmas. Fingers crossed.

PJPS profile image
PJPSβ€’ in reply toshellykent

Happy Christmas to you too & thanks.

Great to hear it's going well for you. It's what we all love to hear. ATB

PJPS profile image
PJPSβ€’ in reply to

Thank you.

Footfairy-1 profile image
Footfairy-1

That's great PJPS. Helps us all to glimps light at the end of a dark tunnel. Wishing you a happy and healthy Christmas and New Year x πŸŽ„β›„οΈβ„οΈπŸŽ†

PJPS profile image
PJPSβ€’ in reply toFootfairy-1

Merry Christmas to you too.

allykat profile image
allykat

That's really great news. So pleased for you!

PJPS profile image
PJPSβ€’ in reply toallykat

Thank you.

York54 profile image
York54

Fabulous news PJPS!! Have a great Christmas and a happy and healthy new year!!πŸŽ„πŸŽ„πŸŽ„πŸŽ„πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

PJPS profile image
PJPSβ€’ in reply toYork54

Thanks, Merry Christmas to you too.

PMRpro profile image
PMRproAmbassador

Great! Long may it last!

PJPS profile image
PJPSβ€’ in reply toPMRpro

Many thanks.

powerwalk profile image
powerwalk

Well done - sooo good to hear of someone off the pred and doing ok. Good luck.

PJPS profile image
PJPSβ€’ in reply topowerwalk

Thank you.

Rokerman profile image
Rokerman

PJPS - Consider this as your Christmas present to yourself! Well done and, as others have said, it’s great encouragement to those of us who (we hope!) are β€˜nearly there’ !

PJPS profile image
PJPSβ€’ in reply toRokerman

Thank you and good luck on your journey.

Rabbit1951 profile image
Rabbit1951

That gives us all hope. Have. Wonderful Christmas and hope you continue to stay off prednisone

. Cheers xx

PJPS profile image
PJPSβ€’ in reply toRabbit1951

Thank you, I'm certainly keeping my fingers crossed. Merry Christmas.

karools16 profile image
karools16

Marvellous! Well done!

PJPS profile image
PJPSβ€’ in reply tokarools16

Thank you.

Longtimer profile image
Longtimer

Congratulations, I just love hearing that it`s possible!

PJPS profile image
PJPSβ€’ in reply toLongtimer

Thanks, its been a long journey but this forum gives great support on the way.

Longtimer profile image
Longtimer

Congratulations, I just love hearing that it`s possible!

Sandy1947 profile image
Sandy1947

Congrats! Your story is inspirational to all of us!

PJPS profile image
PJPSβ€’ in reply toSandy1947

Thanks, best wishes to you.

Marilyn1959 profile image
Marilyn1959

PJPS long may you be symptom and pred free! Well done! Have a wonderful Christmas.

PJPS profile image
PJPSβ€’ in reply toMarilyn1959

Thank you, happy Christmas.

powerwalk profile image
powerwalk

Can I ask how long you were on the Pred? Thanks

PJPS profile image
PJPSβ€’ in reply topowerwalk

I was on Pred for almost three years, I had one flare in that time which set me back a bit. I am just so grateful for the support and available information on this forum. I am also lucky to have a good GP. Best wishes to you.

dartmoorlass profile image
dartmoorlass

Ditto everything said by all fellow travellers along this bumpy GCA/PM road. Well done - I'm imagining you in my mind's eye, striding out on your daily 30 min walks - so happy for you! It almost seems an anti-climax to wish you a Happy 2018, you've got it already!

Very best wishes and many thanks for sharing your special news with us all.

PJPS profile image
PJPSβ€’ in reply todartmoorlass

Thank you for your kind words. I really enjoy my daily walks! All the best to you.

Insight329 profile image
Insight329

Congratulations! Such wonderful news! And so kind of you to take the time to post and share this uplifting news! Happy Holidays!

PJPS profile image
PJPSβ€’ in reply toInsight329

Thank you, happy Christmas.

IslandShell profile image
IslandShell

Thank you for the encouraging words. Best Wishes to you...

PJPS profile image
PJPSβ€’ in reply toIslandShell

Thanks, hope you have a good Christmas

casse profile image
casse

Great news! It is always so encouraging to hear success stories. It is a very long long journey. Merry Christmas to youπŸ‘πŸ€—

PJPS profile image
PJPSβ€’ in reply tocasse

Thank you, Merry Christmas to you too

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