Hello everyone! I am recently diagnosed with PMR (December 2012) and am new to this site. My PMR is being managed by my GP who is an absolute gem. I started at 20mg per day Prednisolone and currently am on 10mg per day. My GP phones me at pre-arranged three weekly intervals to assess how I am (general wellbeing, pain, side effects etc). He then decides on the reduction in dosage. I have had a couple of blips along the way (fatigue etc) but generally, I have had no side effects from the Prednisolone and am pain free. I am also taking Alendronic Acid 70mg Tablets and Calcium + D3 chewable tablets to prevent osteoporosis. He has said, on no account, decrease or increase the dosage myself without prior speaking to him. At any time, I can call the surgery, leave a message for my GP and he rings me within the hour. I have never had to do that but it is wonderful to have that re-assurance. A couple of friends have said I should ask to be referred to a Rheumatologist but my overall feeling is - if it ain't broke, don't fix it! I have a GP who is managing my PMR very well and I can call him at any time. If I was referred to a Rheumatolist, I certainly wouldn't have that ready back-up - I would have to wait for the next hospital appointment. My main reason for this blog is the fact that on reading the various blogs, many of you seem to self adjust your Prednisolone dosages which concerns me slightly. Especially as my GP has said, because it is such a powerful drug, not to change dosage without prior consultation. This PMR hit me "out of the blue". I had not been unwell in any way, no stress (we are recently retired and enjoying the freedom that that brings) so I found this PMR thing quite bizarre and difficult to take on board. Fortunately, it has only effected my shoulders and arms. Any comments re the varying dosage would be most helpful.
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