Double booked for next Tuesday.
I was looking forward to seeing a few of you a Ilkley. 🙄😲
Also a favourite place of mine always had a soft spot for it.
A lot of memories 🙄
I’m a tatty at time when it comes to dates
I said I would go to a Christmas do at the owls
Also promised to do a turn there
But here’s too the next time 🥂🍕
I must be more careful 😤
All the best folks take care and all the best
🍀🍀🍀🌹🌹
Ronzy. hugs.
Have a happy painfree Christmas Ronzy. What kind of turn? Hidden talents or what?
Thx😊 and you. Jane.
I was in scouting for 50 odd years.
So I do funny little sketches.
They seem to like them 🙄
I am running out of sketches now 😱
I did one on the cruise ship one time
It went down quite well. Got a compliment
From the comedian. 😱
Catch you next time. 🍀🍀🍀🌹🌹
We'll miss you next week, Ronzy.
We'll have to book you in for next time! What are your fees? 
Season's Greetings to you and yours.
I’m free 🎼
😂 Definitely next time.
Sorry 😳
Hope plenty turn up and you have a great time and plenty of laughs.
Ron 🍀🍀🌹🌹🌹
Thanks Ron, we'll raise our coffee cups to you!
In that case I will send you a picture of me in my silly hat.
After hearing about this meeting in Ilkley and chatting a little with Rugger on message, thought about coming up by train from Stevenage - I live in Hertfordshire. My daughter said it is the steroids driving me to think of doing this!! I am used to travelling long distances by car and would have loved to link up with you but probably not this time.
Not sure this is the place to ask but I will. I have been on15mg Pred since late diagnosis of PMR (CPR) on October 14 2017. CPR was first 75, then 24. Level went down to under 5 and my GP reduced Pred dose to 13mg. November 28. I have some wonderful mornings and enjoy what I do but I also suddenly can hardly keep my eyes open. I have read the 'spoons' pacing story and found it helpful. My eyes just feel so odd, but no headaches. Remember this awful exhaustion as a student nurse in the 60's when seemed I could walk the hospital corridors with my eyes closed!
My GP seems very used to dealing with PMR and confident, but has not suggested a Rheumatologist. My mother had PMR after my father died suddenly and I took her to one back then 1981.
Is it the PMR or/and the steroids making me so spaced out? Any thoughts from those reading this very welcome. Thanks.
You'd be better starting a new thread - just because more people will see it and reply rather than this being a "wrong" place. This is a very strange forum layout for notifications!!
It could be either. PMR is an autoimmune disorder and a/i disorders commonly come with "brain fog". Pred can also cause "brain fog". And of course you may be having a double whammy!
If your GP is getting it right and you are happy - why risk a difficult rheumy? If it morphs to GCA or you run into problems then maybe it is worth it. I've managed to escape a "real" rheumy referral since the very first in the UK who didn't think it was PMR. Everone I've seen since agrees it is - despite the length of time it has lasted. I'm actually about to meet one of the top people in the world who helped draw up the Recommendations and who co-authored a textbook a year or so ago. I hope I don't regret it!!!! It was my request...
I think travelling from Hertfordshire to Yorkshire is above and beyond.....! And we have snow forecast, so a few of us locals might not make it, although it would be lovely to meet you. Maybe plan a trip oop North in better weather? Have a look on the PMRGCAuk charity website to see where your nearest group is.
I think the 'Deathly Fatigue' is a symptom of PMR, rather than the steroids, but others may add more.
I believe a GP is considered able to treat 'uncomplicated' PMR. A Rheumatology referral is definitely recommended for GCA.
Very sensible comments! I will come oop north in the better weather, and thank you for your thoughts on what is happening to me at the moment!
What have I got?
another disappointing rheumatologist visit 
Fed up
Why do I have crazy symptoms at night?
Blood test results Disappointing
