Hello : Hi - I'm Robert and have PMRGCA and various... - PMRGCAuk

PMRGCAuk

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Hello

8 Replies

Hi - I'm Robert and have PMRGCA and various other problems. Just came on the site to find out all the problems and how they might relate to other conditions I have

8 Replies
jinasc profile image
jinasc

Well that is a bit oblique, please expand.

Or is it you just want to read, gain knowledge and, perhaps pluck up the courage to share your worries and let us know how so we can help?

if that is the problem, just type away and tell us, we won't be shocked, hurt, or astonished That I can promise you.

Insight329 profile image
Insight329

Welcome to the community! As you will soon learn, stumbling upon this site may be one of the luckiest things you've done. Scroll through the past posts and you may find your answers -- and find answers to questions you didn't even know you had. If you don't find the answers, don't be afraid to ask your questions. The Aunties (experts) here are very nuturing and knowlegeable.

in reply to Insight329

And may I add, you will also get a few laughs along the way as well :-)

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi Robert,

Have a look at this, and then come back with specific questions to other illness etc.

healthunlocked.com/pmrgcauk...

SheffieldJane profile image
SheffieldJane

Hi Robert and welcome. It all gets very complex as we get older. This forum does help to untangle some of it and gives you company along the way.

It's my husband that has all the problems and, sadly, does not like to use online but it will be good to be able to look at things and give him hope that he's not the only one suffering with various illnesses. I know when I had my hysterectomy it was brilliant to find a site that gave me the opportunity to chat and ask questions. He may be quiet on here but thanks for all the replies and I will be checking in from time to time :-)

PMRpro profile image
PMRproAmbassador in reply to

If you look at this site

pmr-gca-northeast.org.uk/

they have a welcome pack for members which includes a book and a DVD (I think) but they can also be bought individually. Look under "Support Us - Our little shop".

Perhaps he will read/watch them - the DVD called "You are not alone" was made by healthcare professionals and patients to explain to patients and family and friends how PMR/GCA affect us. The booklet explains a lot of stuff you find on the forums. There are many PMR/GCA patients who don't use the internet so we provide the alternatives.

There are stories from patients on the site and also articles by medics. You could print them off for him to read if he doesn't like reading online.

in reply to PMRpro

Thanks for that - fingers crossed

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