Hi. I’m new to the forum but thought I would post as you all sound so friendly and helpful. I would like advice about increasing doses of steroids when having flare ups. Is the general advice to increase even with minor symptoms returning, or may they settle down on a lower dose?
Or should I wait and see if they come back to an unbearable level?
Also regarding side effects of steroids – does anyone else find they are really hot all the time (not just when having hot flushes)? And I have a very annoying tingly tongue and lips – distracted when eating (esp chocolate!), but am putting on too much weight. Sorry if this sounds muddled but lack of sleep on tablets making thinking clearly difficult.