My symptoms started last October with bad headaches, pain in my ears, occipital bones and eyes...I then had a bad period of facial numbness. Could not lift my arms.
It took 7 months and three consultants to give me a diagnosis and as soon as I was given steroids I began to feel better although the tiredness is at the moment something I cannot deal with. Pain killers help with pain, but nothing can help with tiredness. I also have end stage Glaucoma..which is now being attacked from two sources. I empathise with all of you who have this disease and I know if we keep in contact at least we will have some support and knowledge that we are not alone.