I was diagnosed with PMR by my GP 3 weeks ago and put on Prednisolone 30mg a day. Within 3 days I felt brilliant...all swelling had gone from my eyes, hands and lips...the swelling was accompanied by a painful dark red rash which also disappeared. I could walk with very little pain for the first time in 3 years.....it was like a miracle and I was so thankful to get a diagnosis and some effective treatment. I went into hospital 3 days later for a planned hip replacement so the steroids had to be cut down fairly drastically. The swelling returned along with pain but the hospital supplied Morphine and all went well apart from the wound not healing as quickly as it should ( a side effect of steroids).
My GP wants me off Prednisolone as soon as possible and it appears they have changed their minds about my diagnosis....nearest guess now is Rheumatoid Arthritis! I have asked to see a Rheumatologist but Heaven knows when that will happen.
As I reduce the steroids all the old problems are returning....I'm tired of all the guesswork that goes on and feel the need to remind the various GPs I see that while they decide what I have and how to treat it I am having to live with pain, itching and constant exhaustion.