It's been such a difficult week & I can't help but doubt my PMR diagnosis!
I've had days when my I feel like I have a band of pain around my upper body (shoulders, neck & back) and my middle (hips & lower back), Add a headache/eye strain to the mix, with a confused muzzy brain i had a problem keeping my emotions in check, which is very out of character! I'm only 53 but feel such an old lady at the moment, shuffling around & actually groaning at times!
Last Thursday my jaw hurt when I was having my lunch & in a panic I phoned my rheumy. i explained I had just been diagnosed with VMT but was still worried about GCA but he reassured me the 15mg of Pred I'm on should protect my eyes. He did say he wanted me to have blood tests asap, so when I received the forms on Wednesday I went to the hospital & had them done straight away. I haven't had the results as yet but I'm hoping my inflammatory markers haven't risen.
This is my 3rd week on 15mg of Pred - shouldn't I be pain free by now?
Is it normal for the pain to move around my body? On Wednesday this week I struggled as the pain in my upper & lower body was quite unbearable. Today my shoulders are a little uncomfortable (I could live with this!) but my hips & thighs hurt more. My shakes are even worse, as I can feel it from my shoulders all the way down to my fingers, very annoying
I follow the posts on here avidly & I think if it's PMR the Pred would have worked straight away, so do you think I've been diagnosed correctly?
Apologies I sound like a drama queen but I would love to get rid of this discomfort & exhaustion and start living a normal life again! I'm finding it so frustrating that the meds havn't been the magic cure others have spoken about, so I can't help but question if it is PMR.
I actually feel a bit better for getting that off my chest, so thank you all for listening 😄