Hi haven't posted for sometime. Had been reducing slowly down to 10.5 at Christmas and then had a massive flare and started to have GCA symptoms, no problems with eyes just very bad headaches and temple pain. Up to this week had been on 20 mg for the last 6 weeks on the advice of GP and rheumy that I went to see privately as GP felt I hadn't got any sign of GCA as the temporal arteries were not raised(!) Anyway rheumy confirmed had PMR with some GCA symptoms, with normal blood results. As an aside thank you Celtic for suggesting the rheumy- he was lovely and understanding.
I did mention to the rheumy that on 20 mg ( I had been on it for 4 weeks by the time I went to see him) I could still feel the symptoms bubbling underneath. I was still getting some temple pain and my PMR symptoms were still there albeit not badly ( although had gone completly when I first started on Pred at 15 mg in November 2014). I remained on the 20 mg for another two weeks after seeing him to see if the situation got better.
I was due then to reduce last weekend to 19mg but felt that as symptoms were not completly under control it seemed foolhardy to reduce. I therefore went up on Monday to 21 mg and felt that all my symptoms were so much better and under control. The downside of this is since going up to 21mg I have felt so nauseous and the thought of food is not good.
To top this last night I had a bad case of diarrhea ( I think it was some fish I ate) so have managed to stabilise stomach, I have taken Pred this morning and have not been sick or had diarrhoea. I think it takes 2-3 hours for the uncoated Pred to get into the system.
I couldn't face though taking 21 mg and have only taken so far this morning 20 mg.
Am at a bit of a quandary now what to do as the 21mg seems to make me feel so sick ( I'm not sick just can't face food) but controls the symptoms.
Any body else had this? Any advice welcome