Hi. I'm down to 1mg prednisolone after 3 and 1/2 years of PMR. I've been on 1mg since early July. I'm on holiday now and thought being away from work and stress was a good time to keep reducing pred! After a recent blood test with CRP about 8 or 9 my rheumatologist who has been great suggested alternating 1mg and no pred for the next month. After a few days of this I have shoulder and hip pain, not impossible to deal with but affecting my sleep plus lots of sneezing and slightly sore eyes, and headaches, and slight stomach pains and nausea. I'm not particularly tired which seems to be a major adrenals not working symptom but I am on thyroxine and am usually a bit hyper ( although TSH ok). My queries are, do other people get sneezing type symptoms and digestive problems and is the last bit of getting down to no pred likely to be difficult and should I take it more slowly?
Many thanks for any thoughts, this forum has been exceedingly useful!