Helpful PMR information from this website

After 60 days with this condition I finally received an appointment with a Rheumatologist. He quickly diagnosed PMR, handed me a brief fact sheet, adjusted the daily dose of prednisone from my GP, scheduled a future blood and appointment. I can tell from the waiting room that he has a busy practice and can't allocate much time for each appointment. I find your website extremely helpful in understanding the disease and the unfortunate long term struggle toward remission.

4 Replies

  • How was his fact sheet? Bet the "facts" don't coincide with most of our facts!

  • The fact sheet was rudimentary, but a place to start. At the beginning I couldn't even spell the disease. I followed up with the Mayo clinic website which provided more detail, but many of my questions and concerns remained unanswered. I find it helpful to learn how others are coping. I remember the extreme pain at the onset of this condition. Thankful for the relief provided by Prednisone in site of its side effects.

  • I was going to give you a link to a post on site called but it seems to be messing about. They have a PMR and GCA forum there too - it was the original UK one - and at the top of the list of threads is one with a post with a whole load of approved links.

    This may help get it if you google it - once the gurus have sorted it out: › Discussion Forums › Bones, joints and muscles

    Another site you may find some answers is this one:

    where there are articles by both doctors and other healthcare professionals as well as patients. They also have a DVD and booklet for general purchase (sent to their members as part of a pack as well) explaining a lot about PMR and GCA in ordinary language. They also have an associated forum.

  • The link provided helpful patient information. Thanks for your feedback.

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