I was recently diagnosed with PMR (I think....I live in France and the rheumatologist spoke in French so quickly I am not completely convinced I have PMR). I do/did have the symptoms though, bi-lateral aches in shoulders, hips proceeded by pain in left wrist for several months, feeling frozen each morning and improving once I was up and around. Initially started by my Dr on massive dose of steroids (80mgs per day for 6 days!) Of course I felt like I could conquer the world for a few days and then an immediate stop only to feel like I'd been a car crash the following day.
After visiting rheumo, was started on 40 mg divided into 2 doses for 10 days, followed by a slow (but not slow enough decline I now see)....am currently at 15mg in one early morning dose and this is below my threshold...pain beginning to creep back in and by arthritic neck has been very, very sore. This ail follows a stressful 4 weeks with my mother dying (this is a good thing, she was very ill with dementia and had been an empty shell) however stressful for us to begin organising our trip across for the cremation and our car also dying and needing replacing before we left for UK....not straight forward in France, so tense.
We're now home, life is back to it's normal peaceful self and my neck is feeling less painful as the tension subsides. I have decided to go up to 17.5 mg tomorrow if I can manage to cut my 5mg tab in half and see if that takes me back to something manageable.....I have really enjoyed being well and not feeling like an old lady
I had Carpal Tunnel surgery on both hands last year and was just beginning to enjoy the relief of symptoms (that I'd had for 10 years+) then the PMR set in. I am looking forward to a few more years of feeling normal for a 61 year old.....(although my Dr says I have the neck of an 80 year when he sees my X-rays!)
I be grateful to hear anything you want to tell me, any tips (although I have been reading posts on this site) and if someone could explain what a flare is and why?
Thanks to my virtual friend Doreen who sent me here...what a star