Hi everyone from the US. First of all I really want to thank all of you for your posts. I have learned so much about PMR/GCA that I could never have learned by myself or from my Dr.. Keep it up. My heart goes out to you all struggling with this very frustrating disease.
I am a 62yo female that was diagnosed this last Feb with PMR. I am very active, working full time (1 hour commute in a car each way) and a Cross Fit student (was) and also live on a farm with a lot of chores to do. Stared with 20mg. and have been going up and down since. Today I am on 12mg after going up from 11mg two days ago. I had been on 11mgs for about 4 or 5 weeks but started to experience really bad pain in all the usual places about 2 weeks ago. So today is day 2 of 11mg. I feel better in my arms , shoulders and neck however my pelvic girdle and lower back is killing me. Having difficulity getting up and walking, lifting my legs. Maybe it will take a few days on 12mg to feel better?.
Plus my MD Rhumatologist wants to put me on Methytrexate and so far I have refused that treatment. I do not want to do that. He is pretty insistant and is not used to anyone refusing...so I think...
I have also gone to a Naturopath who has given me suppliments that have really lowered my inflammation. I was feeling quite well until a few weeks ago. I would have a flare one day and the next I would feel fine. Then this week I had a flare and then another and another and and... I read a few days ago about increasing Pred just 1 mg could be the answer. So to sum it up I have increased from 11mg to 12mg and am on day two.
Any and all suggestions would be welcome.
Do I just stay the course with 12mg for a bit to see how I do?
Has anyone else experienced this business of feeling good one day and feeling awful the next? Maybe that is normal?
Should I be pain free when I am doing well? (I am NEVER pain free.)