I am newly diagnosed. Have been taking pred 20mg for 6 weeks. Pain wise I am very lucky and have been completely pain free since 8 hours after the first dose.
Although 63 I was still working full time, and as I am self employed have been fortunate enough to be able to reduce my working hours.
Knowing from reading all these forum posts avidly ( and Kate Gilbert's book) how important it is to pace yourself and not get too tired, I have been trying to assess things.
What I have had since the beginning is maybe one day a week when I feel completely exhausted. What I have now feels like fatigue nearly all the time. But if I can isolate one thing it is more that my eyes feel weird...tired...heavy...slightly blurry, as though I am very tired and have not had nearly enough sleep.
Any ideas? Is this pred? I have no headache, jaw ache or anything else sinister.