Hi everyone. I've not posted for quite a while so I thought i'd provide a summary of my 'journey' so far. I was first diagnosed in Jan 2015 so probably had it from early December 2014 when my physio recommended I see my GP when I went to her with neck and back of upper leg pain. I started on 15mg Pred reducing to 12, then 10, then 9 (on this for 2/3 months), followed by spells on 8, 7, 6, 5, 4 (was on this for about 8 weeks as I found it a big drop and now been on 3.5 for one week now (doesn't sound much of a reduction 4 to 3.5 (these are the coated version by the way) but i've noticed the drop.
So I'm about 14 months in and on 3.5mg. Symptoms still there (neck, legs, feeling of puffiness under toes) and fatigue but much improved from when first diagnosed. I find it a struggle quite often through the day and evenings I get quite a bit of relief as the discomfort goes off.
I'd be interested to hear from other sufferers who went through a similar story and where they are now.