I got my esr results back which was 31, previously was 32. On the day of the bloods been taken i was not feeling too bad and susspect that my esr goes much higher during periods of a flare.
Yesterday i went to for my results on a ct scan of my chest, bowels and pelvis, this was done due to having crohns disease and because of a change in bowels movements.
I asked for a copy of my ct scan and he put it in an envelope, having left the office i read it and wanted to discuss the findings with the doctor,my daughter went back to him and asked him about it. Eventually i managed to talk to him and explained that the radiographers report was vague and i felt did not included other parts of the digestive track which crohns can attack. Because i was challenging the report he bacame rude, arrogant and at no point was i allowed to have an opinion of my own. At no point did i think i was having a crohns flare as i know only too well what they feel like. I was trying to get to the bottom of a change in my bowel movements.
My daughter who was with me was visably upset because she knows how unwell i am, and also we treat people with respect but often feel like victims when going to see specialists because when you are trying to explain symptoms however unusal and they get dismissed.
My daughter decided to make a complaint due to his behaviour.
This morning i feel worse than ever, not only in physical pain but feel very emotional about yesterdays expereince.
Do we always have to be passive and say yes doctor even if we have questions or concerns that we want to raise.
Christine
Written by
yorkshiregirl44
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Oh dear Chritine, poor you. Do feel sorry, and fully understand your frustration with rheumy. The one I saw 3 years ago obviously came out the same drawer!
I can understand that specialists don't like their opinions challenged - after all they have spent years learning their trade, but unfortunately however skilled they are in their field some have little or no knowledge of how to deal with patients!
Unfortunately sometimes as patients we don't always come across as we would like, especially when stressed. However the doctor should recognise that, and whoever you are or what the situation there is no excuse for rudeness. I'm glad your daughter was with you, and if you both feel he was out of order then he should be reported.
Try to put this unfortunate episode behind you. And no you don't always have to passive, any good doctor should listen to your concerns and explain, but unfortunately they can't always do it as fully as we would like due to time constraints. Take care.
Unfortunately you've got lots going on as well as PMR, so no wonder you don't whether you're coming or going. And your other problems are not doing your PMR any favours either.
Quite agree we all have a right to express our opinions without being 'talked down to' by some professionals, in whatever field they are.
But, if you are a true Yorkshire girl, then you won't let that happen, tha knows!
Unfortunately there are a lot of people who went to medical school and whose qualifications are very good whose patient-relationship skills are not anything like as good. Many of them feel challenged when you ask for more information or seem to question what they believe to be true. Mention having acquired info from the internet and you become a marked person - even when the info came from the national charity support site who gave links to the doctor's own guidelines!
The worrying thing is there is a movement within the NHS to provide chronically ill patients with more information about managing their own illness as an "Expert Patient". They do the courses and leave in possession of the knowledge to monitor and manage their illness better to avoid ending up in hospital - and find their requests ignored and even overridden by both nurses and doctors who actually know less about said illness than they do. A study was done with these patients - and came to exactly those conclusions.
I can beleive that..why do they have a need to undermine our views and knowledge of what we deal with on a daily basis.
This doctor said that the less you do your ability to be active will go. This suggests we sit around all day doing nothing. This is just not true, i know what i can and cant do and its not the lack of activity that causes my pain and hotness, infact its made worse by ignoring my symptoms and pushing my body too far.
I feel unable to cope with the number of specialists involved...the endo saying he wants me off levo, the neurologist saying my leg numbness at times is coming from crohns disease. Bowel specialist saying non of my symptoms ane due to CD. Still waiting for rheumy appointment.
Licking my wounds today and hopefully find the strength to fight another day.
It is your body, your illness and your right to have a say. No one else can possibly understand what you are feeling . Will your GP help untangle the conflicting advice and bang their arrogant heads together! I am going to ask my GP to take the lead on my PMR as the rheumatologist was another "I know best" type and my GP listens.
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Flare up and ESR
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