Re tiredness after reducing steroids

I was diagnosed with PMR and GCA a year ago. I have reduced pred from 50mg to 7mg over that time without a problem, but have begun to feel much more tired lately, and more or less have to have a sleep in the day.I wonder if this is the PMR returning though I hardly have any aches and pains so the steroids work in that respect and my blood tests have all been good. I am not clear whether the steroids improve all aspects of PMR or only the inflammation. Has anybody else experienced this or have any comments? Thanks for any help.

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  • Took a year to come down from 50 mg now on 5mg i lost sight in one eye due to GCR all my blood tests normal all the time ,yes still have days need a rest ,but in a year have come long way .The Steroids i am sure help with the pain ,and iinflammation ,.Good luck

  • I have had PMR for just over two years and am now on 2mg of pred but still get very tired. Sometimes just have to go and have a lie down and if I don't I often fall asleep in my chair.Mind you, I am 72, so that may have something to do with it...

  • Thanks for the answer. I am 69 so it could have a bearing....but hard to remember what normal was like. Anyway, definitely better than having the pains. All the best.

  • Hello allotment lover..I have had PMR for 9 years and it's been a real Roller-Coaster ride .. The tiredness gets in the way of my everyday life and I have to give in and rest for at least a couple of hours of an afternoon. If I don't get the rest then the next day is usually much harder to get through. I am 67years old and some people say maybe it's more of an age thing but I'm sure the prednisolone is one of the main causes . This week I am trying to get as much rest as possible as I am on Holiday in a River Lodge in Stratford -on-Avon . The weather's wonderful but I'm still getting exhaustion. Like you say I would love to know what normal life was like once again. Reading other sufferers posts makes you realise what a horrible condition this is. Today was one of my best days for a long time and I even managed to get out for a nice lunch - but slept for 2 hours when I got home, which means that the nights are long.. Never mind - onwards and upwards. I wish you all the best and that you feel better soon. trish29

  • have good holiday it is a horror of a pain PMR an GCR ,HOPE ALL GOES WELL .

  • Thank you twowatsons.. I am enjoying the holiday as the Lodge is nice and comfortable and there is so much going on with the Wildlife and the other half goes fishing.. I try to keep up with him but because I've got a yuk day today we have decided just to chill out . l felt so good yesterday but today I am like an old woman - I don't want to be this way but have to accept it. I'm hoping to go out tomorrow . I also have to come down half a mg steroid this week .I've managed 2days so far but keeping an eye on it as I don't want a flare-up. Isn't the Forum great where we help and encourage each other.. Maybe I day we will all be free of it. Thanks and I'm just off to get my nap. trish 29

  • Thanks for taking the trouble to reply. Somehow it helps to know it is not just me, I sometimes think I should pull myself together... Not knowing how days are going to be makes planning hard - I am not normally a "go with the flow " person. A river Lodge sounds lovely, I do hope it restores you.

    All the best to you.

  • I have had PMR for just over two years and am now on 2mg of pred but still get very tired. Sometimes just have to go and have a lie down and if I don't I often fall asleep in my chair.Mind you, I am 72, so that may have something to do with it...

  • Yes would love to have a day of energy i take each day as it comes,i feel 40 in side head and older than 79 some days one day may find a curer ,so keep napping i do good luck

  • Started on 40 now on 5mg ,yes i most day ,s need to lie down ,have pain in arms all esr and blood tests ok , ,some days better than others ,but just enjoy good days ,is all i can do ,so hope feel better soon ,

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