So I saw my rheumy today and we have agreed a plan! Basically I am not getting the relieve we both think I should from 18mg / 19mg of pred. I am still on half days at work and still really fatigued with quite a bit of hip pain, not sleeping well etc etc. I have been reducing from 20mg over the last 2 months on the dead slow method. Just to recall I had been down to 14 mg and went back up as pain had increased. Anyway I asked if he felt I had the right diagnosis of PMR and he agreed that it may be the case, although I did have a high CRP (64) result and responded well to 15mg of pred initially. latest blood are all normal. Now the plan is to reduce to 15mg tomorrow then in 2 weeks down to 12.5mg and in a further two weeks down to 10mg. This should confirm if the steroids are actually doing anything for me or not, i.e. more pain on reduced steroid should confirm if it's PMR or not. I am happy with this approach but not particularly looking forward to any levels of pain that I had before I started the steroid journey. In addition he is arranging an MRI scan of my hips.
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