I developed PMR in 2010 and had a relapse in 2011. I had a lot of the 'nasties' to cope with, but avoided diabetes thank heavens. I gradually recovered last year, 2014.
I have been on dose of 30mg twice and the last time I really struggled to reduce down to my present doses of 5,4 and 3.5mg depending on how I feel and what the day might bring as regards stress.
I still have pain, but not that of PMR. It affects my knees and shoulders mostly and I sometimes have a sort of numbness down left arm into hand. This comes and goes and I think it's pressure on the ulnar nerve caused by inflammation. Keeping warm helps a lot - If I get cold I'm in trouble - grinding pains in legs and arms.
I believe that I have suffered damage to my tendons and cartilage caused by the steroid, but wonder if this will reverse. It really upsets me to think I will be like this for the rest of my life.
My skin is also not as it was, but I moisturise every day and it certainly does not bruise or bleed badly as when I was on the higher doses. Muscle strength right down, but don't like to exercise too much incase I cause more damage.
Any advice will be wonderful! Why don't I ask my doctor? The last time I saw him he just looked bored when I mentioned pain - especially when reducing pred. I was on 5mg and he said I must reduce, and now I only have scripts for 1mg and 2.5mg.