Hi Everyone, I hope all are somewhat well and surviving these "rare" inflammations. Have been working on civil rights issues, trying to arrange hip replacement surgery (10 wk.s now).
Was hospitalized last week for incredible dizziness in an MRI tube and heart pain. With the other tests, I asked them to test the cortisol levels. I had continuing weakness, dizziness.
Test came back 1.43 L ---range is 4.0 - 22.0 ug/DL
taken at 3pm two hours after taking the pred.
They released me shortly after -- said to contact an endocrinologist. I have - appt. 3wks till appt.
Rheum said to increase pred up to 4mg from the 2mg ( have been on 2 for 6 mo.s).
Have done that. Not so weak, dizzy. Scared. Do not want Addison's. Don't want an attack of adrenal insufficiency.
Thought I was through GCA ( now also diagnosed with PMR) but I guess not. Any ideas, thoughts? Much appreciated. Best always to all, Whittlesey