Is this my body trying to kick in: Down to 18mg... - PMRGCAuk

PMRGCAuk

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Is this my body trying to kick in

olive2709 profile image
7 Replies

Down to 18mg pred for last 10days feeling good ,sleeping 6hours a night ,no pain, mood good .here comes the but last 2 days every time I sit down reading watching tv talking dropping off only for 10minutes at a time . Any one else had this or any idea's

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olive2709 profile image
olive2709
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7 Replies
PMRpro profile image
PMRproAmbassador

It shouldn't be your body trying to kick in at a dose of 18mg - it is below 10mg that the adrenals need to start "waking up". However, it is a new, lower dose and your body may be getting used to it still. Higher pred does give some people a boost and maybe you are now down to a dose that doesn't do it for you. Or you may be hatching an infection, a cold or something and your body is telling you to rest.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

hi olive,

Nothing unusual or to worry about -it happens to us all! Yet another Pred side effect for some.

I wouldn't have thought your body was kicking in yet, 18mg is still a lot higher than "normal" levels but I could be wrong.

I used to do it quite regularly for a while, as soon as I sat to read paper or do crossword, off I went! If I felt drowsy I'd get and do something else, even just make a cuppa. It then went away, but now that I'm down to 5.5mg it's started again, I think probably because I'm at that critical level when adrenals not sure what to do!!

No surprise there then.

Don't worry, just enjoy the rest!. DL

Celtic profile image
CelticPMRGCAuk volunteer

Olive, enjoy "dropping off" - I do it all the time.....and I'm no longer on steroids!

maria40 profile image
maria40

I'm now down to 15.5 and am enjoying these delicious little unplanned naps from which I'm usually woken by the phone ringing. I think they may be due to the fact that now I'm feeling a bit more normal I'm doing more and resting less without being exhausted. But I'm just enjoying them because as you say they never last much more than 10-15 mins so they're not going to spoil my sleep.

olive2709 profile image
olive2709

All I can say is thank heaven for sky tv as I have to use rewind and catch up keep missing the middle of shows tried to watch a film today90 minute film took 110minutes fell asleep twice

Charlie1boy profile image
Charlie1boy

Only 10 minutes??!! I'm just down to 15mg, and can drop off for a good hour after lunch, and still feel tired at night. I put it down to a combination of PMR and the steroids. Clearly, the body needs rest!

piglette profile image
piglette

I used to need very little sleep. I am now always falling asleep, particularly watching TV.

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