Saw my rheumatologist yesterday and came away feeling as though I was being a bit of a nuisance and perhaps making a fuss, as she had more deserving people to see. My husband didn't think that was what she was getting at, but it was the way I was made to feel. She is irritated that I have not got my pred down as low as she wanted (I'm down to 17.5 having started on 60 in September, and was down to 30 when I saw her in December). I mentioned that I hadn't dropped as fast as I started getting head pain again, and she suggested I take paracetamol. Any other symptoms she put down to the pred. Doesn't now want to see me for 9 month now, as my blood results are OK, and wants me virtually off the pred by then, and will discharge me to GP care. I am seeing ophthalmology in a couple of weeks which is reassuring! My cardiology appointment was postponed from last week to 1st May, so I guess my echocardiogram was ok after my SVT attck. I've decided that as nobody is worried about me I'll take my lead from them!
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