Pregabalin: Hi, I am new at this, could anyone... - PMRGCAuk

PMRGCAuk

21,033 members39,718 posts

Pregabalin

dodo1 profile image
2 Replies

Hi, I am new at this, could anyone tell me whether they have ever been prescribed pregabalin to help with PMR pain. I am having trouble getting from 6mg to 5.1/2 even going the long way.

Written by
dodo1 profile image
dodo1
To view profiles and participate in discussions please or .
Read more about...
2 Replies
PMRpro profile image
PMRproAmbassador

It's all very well saying "I'm new at this"!!!! How long have you been on pred, what was your starting dose and have you had problems before? What do you mean by "the long way"?

When you are diagnosed with PMR and given pred they start you on a dose that works for almost everyone - it is almost certainly far higher than you need. Then you are to reduce to the lowest dose that controls your symptoms acceptably. That doesn't mean you are aiming for zero from the outset. It is "normal" to take up to 18 months (or even longer) to get from a starting dose of 15mg to 5mg or so. These are facts that it appears that many doctors either don't know or ignore.

It may well be that 6mg is the dose that controls your symptoms for the moment. PMR is just the name for the symptoms - they are due to an underlying autoimmune disorder that affects the blood vessels and causes a vasculitis. As long as that is active you will need some medication. It can last for a couple of years - or it can last longer. I have had PMR for 10 years, I have only recently got below 5mg. It doesn't necessarily burn out in a couple of years - if you are lucky it does. It may not.

Tell us more - we can then tell you more.

But in the meantime: pregabalin isn't a normal medication for PMR. It is for nerve pain, is often used for fibromyalgia. PMR and fibromyalgia are totally different illnesses and usually what works for one doesn't work for the other. It may help you but it will be because you have something other than PMR - did your doctor suggest that?

iforget profile image
iforget

I had Lyrica (the other name for pregabalin) for neuropathic pain unrelated to PMR...but would be interested to hear if/how it works for PMR pain

Not what you're looking for?

You may also like...

Pregabalin 75mgs

Hi, if anyone has had unpleasent side effects of taking Pregabalin , I should be interested to...

Pregabalin (Lyrica) for Low Back Pain and Muscle Spasms

Has anyone tried Lyrica? Rhemy prescribed 75 mg at bedtime which makes no sense to me or Pharmist?...

Colonoscopy and sick day rules

I am having a colonoscopy and am very stressed about it - I am thinking I should follow sick day...

Are you on pregabalin or gabapentin for any reason? This may be relevant to you and a GP appointment may be needed.

This has just been posted on the Lupus forum:...

Prednisone and Insomnia

I am presently taking 10 mg prednisone and next week I will taper to 9 mg. The problem I am having...