I was diagnosed by my rheumatologist in jan this year with PMR and started on 20mg of pred. After a very up and down period possibly due to reducing too fast initially, I managed to get down to 15mg by my visit last week, although I had quite a lot of PMR reduction pain that particular day which I mentioned to the rheumatologist. I was then amazed to see that he had written to my GP saying I now had no muscle pain, what sort of pain did he think I had?He also wanted me to get down to below 10mg asap.
I had seen him previously four weeks earlier and had asked about being checked for vit D. He did not think this was necessary so I got my local surgery to organise a blood check. The result was 26 ng/ml, I believe a minimum of around 50 is recommended. At the last visit I asked the rheumatologist about a supplement he said 'aren't you taking anything'? He had not mentioned vit D ever. He then said I should go to Holland and Barrett and get something.
Also when I go to visit him he has started to wait by the lift for me and embraces me, kisses on both cheeks, cuddle etc. The same when I leave. I find this rather uncomfortable. He is in his 70s I am in my 60s.
I have only seen the rheumatologist (privately) not a GP, as my surgery had failed to make any diagnosis over three months last year. I have had three GPs allocated to me in that time two have left and the current one is leaving in June. I have managed to make an appointment to see her in June, there is a four week waiting list. I have talked to her on the phone although even that can take up to a week. I am not seeing them for anything else and have always been very healthy.
If I can get something sorted out with the local surgery could I just use them with no rheumatologist? The current NHS waiting time around here for a rheumatologist is around ten weeks, but I could go privately again.