Hello. Had normal blood tests. GP feels pred aff... - PMRGCAuk

PMRGCAuk

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Hello. Had normal blood tests. GP feels pred affecting me. Cut down from 15mg to 10mg for 4 days to see how it goes. Any thoughts.

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annihami
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polkadotcom profile image
polkadotcom

I'd be a bit doubtful about such a large reduction and just 4 days seems an odd amount of time given to it for a trial. I would have asked if I could go down to 12.5mg first - and then I would have alternated 15/12.5mg for a few days.

However, he must think it worth a try if he just 'thinks' Pred is affecting you. I was never in any doubt that it was!

annihami profile image
annihami in reply to polkadotcom

Thank you. He did say to phone him after 4 days to see how its going, not actually only try for a short time. I mentioned alternating doses as you suggest and he said that would be a possibility. So far I have a bit of neck ache and lower back niggling. Its the lack of energy that concerns me. I mopped my tiny kitchen floor and felt exhausted! It takes so long to get going in the morning. I always seem to have a headache across the forehead. SO SORRY. Talk about winge! From reading the board, I know I'm lucky, so many people are really suffering on a daily basis. With best wishes to all. Ann

kingharold11 profile image
kingharold11 in reply to annihami

don't be sorry we all suffer with this disease and the medication

annihami profile image
annihami in reply to kingharold11

Thank you kingharold11.

suzieh profile image
suzieh

If you have no pain then go ahead and reduce. I had to go carefully and slowly from 15mg to 10 mg - (over the last 6 months) My Dr suggested dropping 1 mg per month, (after blood tests to see inflammation levels) and not to be afraid of sticking at a level for longer if needed. I did feel rough and tired at times, with some headaches,but only had some reminder pains in the shoulders for a week after dropping from 11mg to 10mg - it then went away without me having to go back to a higher dose.

Recently I have been feeling good so have reduced in the last 2 weeks from 10mg - 9.5mg with no problems at all (so far..............) - firstly alternating doses; then dropping the 10 mg to every 3 days. I even went to Pilates 3 times last week with no ill effects!!

annihami profile image
annihami in reply to suzieh

Hi Suzieh, thanks for your imput. Good luck with the Pilates. I get excited when I can do the walk to work. All 20 minutes of it. (Was 10 minutes this time last year)! Have picked up a bit of a virus! Watch this space. Best wishes, Ann