A month ago I was put onto 50mg Pred and had a temporal biopsy for suspected PMR & GCA. I saw the Rheumy on Tuesday last and he is not convinced that I have PMR but will not rule out GCA (the biopsy was negative but the tissue taken was 7mm not the recommended <1cm). Historical records(last 4 years) demonstrate an ESR level of 44, not affected by the Pred (I am also T2 diabetic and have lymphodoema in one leg). CRP levels have also remined stable.
However the advice is to stay on 50mg Pred for another 3 weeks;reduce to 40mg for a month;then 30mg for a month; thereafter reductions of 5mg per month(as the body allows).
Whilst at first I seemed to have no side effects from Pred I now have an attention deficiency (can't concentrate for long);lethargy;and a voice which takes leave of absence for 15-30 mins periods. At least I have now got a reasonable balance between blood sugars/pred/diet. I suspect it's going to be a long road back!