Itching : Does anyone else suffer from... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

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Itching

Lauhan profile image
6 Replies

Does anyone else suffer from itching skin? I was diagnosed with PKD when i was 28 iam now 56.

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Lauhan profile image
Lauhan
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6 Replies
bonneville profile image
bonneville

My itching seems to be getting worse as well, my last check up with kidney specialist I told him about itching and being tired all the time, no help for us I guess, he just asked if I was drinking enough water, I’m 53 was diagnosed at age 20, I have 20 percent left kidney function and my creatinine level is really high at 220, my next appointment is in April, will ask him again, hope someone on here has an answer to this, best of luck

Lauhan profile image
Lauhan in reply tobonneville

Thank you so much. My creatinine is lower at 108 but and the itching as localised to my arms. But GP seems to think it is related to renal function. Seeing specialist in March so I will let you know if he makes a suggestion. Hope you get the support you need.

bonneville profile image
bonneville in reply toLauhan

Thank you, yes would appreciate the update, good luck and hope you get answers in March x

PaigeyPaigeForLife profile image
PaigeyPaigeForLife in reply tobonneville

Waste build up can cause itching, talk to your Nephrologist for more Information are you urinating frequently and excreting waste?

Lauhan profile image
Lauhan in reply toPaigeyPaigeForLife

Thank you and I will when I see him in March. No problems urinating or excreting waste.

Jane1061 profile image
Jane1061 in reply tobonneville

Hi, I've had a rash due to terrible itching and was given steroid cream with antibiotic combined, gp never said anything about how this could be related to PKD, which was alarming. I'm waiting BP results now so will mention this awful itching and also tiredness.

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