newly told got pkd : ive felt swollen... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

1,167 members263 posts

newly told got pkd

6 Replies

ive felt swollen an numb round sides an back for a while gps said it was linked to neck my consultant told me it wasnt so i get gp to send me for ultrasound the person doing ultrasound tells me i have pkd asked if id been tested before yes twice asked if had blood an urine tests yes twice so he said need ct scan this was 4 days ago is this normal

Read more about...
6 Replies
Mgt8 profile image
Mgt8

Hello, as a fellow pkd person, I can assure you these tests are quite in order. The blood and urine tests keep a check on how your kidneys are working and you'll have these regulally. I had them every 3-6 months at the beginning. The scans give the experts an idea of the extent and position of the cysts. There are different stages of the desease; most people are diagnosed around stage 3. You may or may not feel any symptoms but my advice would be to eat healthily drink plenty of water, exercise regularly, go to your appointments and keep an eye on your blood pressure......... then just get on with life. Keeping in touch with other people who are in the same position as you is also really helpful. This forum has lots of people who are happy to share their knowledge and experience so do ask questions....A trouble shared is a trouble halved.....so they say.       Hoping it all goes well for you.....

in reply toMgt8

are my kidneys suppose to feel real swollen tender to touch and in constant pain 

Mgt8 profile image
Mgt8 in reply to

I'm not a medical practitioner; just a patient. However, my PKD kidneys are swollen with cysts which I just have to put up with but I wouldn't put up with pain......I would see my doctor and discuss pain relief.

Hope this helps......

ive been back doctors but feel im being palmed off all time im frustrated and angry as im not getting no help whatsoever 

in reply to

know that feeling well.tell them what is wrong and get fobbed off cos they think that because you dont have the symptoms you have based on "allegedly normal" scans

give up dont care

Not what you're looking for?

You may also like...

Stage 4 PKD

I am 42 years old been diagnosed with PKD for almost 3 years now. Kidney function is 20%. I went...
Blessed74 profile image

PKD to PLD

I was diagnosed with pkd about 19 yrs ago and it’s laid pretty dormant but about 6 moths ago I was...
MrsLL profile image

Running and PKD

Is running bad for us? I have read that vigorous exercise can cause creatinine to spike which isnt...

MY LIFE IN PKD📸

Let me state firstly this is my journey and i am just sharing my experience. A month ago while i...

PKD - Feeling unwell

Hello everybody. I am a 43 year old male with PKD. My last appointment with my specialist was 8...
Sportbilly profile image

Moderation team

Susan_101 profile image
Susan_101Moderator
PKDC-Admin profile image
PKDC-AdminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.