I have chronic pain due to ADPKD. One of my cysts is 16cm long. My local healthcare team have told me there isn't a surgical option but researching on the internet there seem to be a few options. I've read articles which show renal cyst decortication can significantly improve pain in patients with ADPKD. Sclerosing cysts and ablation have also been tried but I just wondered if anyone here has tried them, were they successful and where was treatment received. I'm only 33 and don't want to live with this pain forever!
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