help - very bad rectocele 4.8 cm

[Chouchou1234]

hi please I have a very bad rectocele 4.8cm and excessive perennial descent

I was told by surgeon not to operate as won’t be successful

47 - and I have bad constipation amd issues with thyroid

But everyday is a nightmare

Getting to a point I don’t want to eat as then I need to poop down to 47 kilo at 5ft 8

Very low oestrogen - would hrt help?

Help and stressed

[BlueLagoon007]

Hi,I also have a rectocelle, perinneal descent and pudendal neuralgia and also advised not to have an operation. If you can find yourself a good pelvic floor physio I am sure they would be able to help you.

I understand your pain and yes everyday is hell. I lost alot of weight too but trying to eat well is also important for your constipation and drinking lots of water.

Maybe a naturopath could help with constipation and getting your gut microbiome right. Having soft bowel movements is really important so that you don't have to strain, as straining just worsens the pelvic floor. Have you tried stool softeners or something natural to help you go?

Try to avoid surgery if you can as I have been told there are no guarantees it would improve things and could only make things worse. It so hard to know what to do.

All the best and look after yourself.

[kitzka in reply to BlueLagoon007]

There is a surgery that has a success rate of 95%. It is normally not even suggested to young women or even women in their 70's and older and even then, only if you don't plan to be sexually active. Actually, the words sexually active is not necessarily accurate. To be specific, it is only if you do not plan to have sex vaginally. The name of the surgery is Colpocleisis. I hope you are seeing a Urogynecologist for your issues. They have the expertise of a Urologist and gynecologist combined. My best wishes for you.

[Sunnysidoop]

I'm sorry to hear of your struggles. Vaginal estrogen (but not oral) helped my cystocele so it might be worth a try

[Chouchou1234 in reply to Sunnysidoop]

Interesting my oestrogen is very low at 55. I have zero hormones.

Is 4.8 cm very big ? When I spoke to to one doctor said that’s huge and then surgeon said that it will be unsuccessful due to the fact ongoing gastro issues .

My T3 was and is very low . So it’s an on going nightmare. I

Thank you 🙏

[EDSZebra]

Hi I also have a rectocele there is no reason why they cannot do surgery I was offered surgery for mine but mine is pushing on everything else. You could try rectal irrigation I have to do this for mine also have a bladder prolapse which wasn't sorted when I had a hysterectomy as stupid gynae surgeon said he couldn't see it so that's got to be sorted. I would push for the rectal prolapse to be done. I'm waiting to a colostomy due to my ehlers danlos syndrome causing severe constipation to the point nothing is working and I'm bleeding.

[Chouchou1234 in reply to EDSZebra]

Thank you . I have the TAI system and go for weeekly colonics x it’s getting to point I’m too scared to eat . Hope you are ok. Sorry to hear about your struggles. Have you seen Dr Asma Fikree at UCH now - she specialised in what you have. Neuro gadtro xx that and Anton Emanuel (both were useless when I spoke to them) but they may help you . Xx