Refused PIP

[Slinks]

Has anybody successfully claimed this? I've just been refused and not sure whether its worth appealing

[MyStar86]

what reason did you raise as your reason for applying for pip?

[Slinks in reply to MyStar86]

Just the constant amount of pain I'm in everyday and not being able to do much or walk anywhere

[MyStar86 in reply to Slinks]

do you have a diagnosis? If you are under a consultation they should be able to help you as i imagine they won’t provide pip without a diagnosis or a consultant to back you up…..hope that helps.

[Slinks in reply to MyStar86]

I'm.under a consultant currently who thinks from an ultrasound I have adenomyosis. I have an MRI booked for next week

[MyStar86 in reply to Slinks]

have you been checked for endometriosis? The mri will only show deep infiltrated endo but you would need a diagnostic laparoscopy to find endo. Definitely ask your consultant this especially given what they already suspect and

[Slinks in reply to MyStar86]

I think the consultant thinks I may have endo also and she has talked about doing a laparoscopy maybe after the MRI. The whole process just takes so long and none of the medication they've tried me on hasn't worked and I refuse to have mirena

[MyStar86 in reply to Slinks]

I refused the coil as well so I do feel your pain I was lucky as I have health insurance so I’ve had 3 laps to remove endo and a total hysterectomy since august 21 was my first lap. It’s a long path but we’ll worth it if you can get a diagnosis because the best treatment for it is excision surgery to remove the endo other treatments I found were useless. Are you under a pain management specialist? If not you should ask your gp or gynaecologist to refer you as you have the right given the pain you are in.

[Skye22]

Yes I have been through the appeals process and it was severely distressing. I had a representative from citizens advice Scotland who helped with the legal process. It is very stressful and demoralising having to prove that you have a condition that is disabling and affects your ability to lead as normal a life as possible. Having to live with daily pain and a severe bowel condition is traumatic in itself without having to discuss your symptoms and treatments with people who are not medically trained or Informed to make an honest decision on how this affects your daily life.Have as much evidence as you can from doctors, treatments you receive, medications and how debilitating your condition affects your daily life.

It took nearly a year for me to win my case and had a terrible effect on my health and wellbeing.

There are agencies and lots of info online about the benefits process and how others have went through the process.

I really do wish you good luck with your appeal and stay strong.

[CecilyParsley]

I have PIP but have autoimmune conditions and arthritis too. However the site Work and Benefits costs just £19 for the year and walks you through appeals, explains point allocation and timescales etc. It has been invaluable to me. Good luck xx

[Boingi200]

this site is for pain. Not for questions about ppi!

[Slinks in reply to Boingi200]

I realise that! What I'm asking is relevant to pain so don't get your point love!

[Alaine1 Administrator in reply to Boingi200]

All questions are valid as it’s related to pelvic pain

[MrsEndeavourMorse]

Hi Slinks,

So sorry to hear about your experience with PIP (and not PPI…something completely different altogether!) As a previous poster advised, take a look at the Work & Benefits site, & get as much help and support before appealing. PIP is not set up for those of us with ‘invisible illnesses / disabilities’! So it is 9/10 a fight. Answer all questions based on your worst day - so not necessarily what you can’t do, but what happens on your worst day. So in my own example, on my worst day my pain means I am bed bound and therefore I’m unable to cook & feed myself. Or my pain is so bad that I lose my concentration on what I am doing and burn myself. Remember…always your worst day. Good luck with your appeal. I’m hopeful that the more people who apply with invisible illness and are accepted means the system & process becomes more successful and easy for those who go after us x

[McGraw]

Yes most definitely l was told that most people who applied will get it hope you get it took me 2,goes 😄

[Dondonsm23]

Appeal appeal as long as you have medical evidence to support everything you should be ok good luck