Pelvic floor pt: Hi folks ...has anyone... - Pelvic Pain Suppo...

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Pelvic floor pt

kalecolbe12 profile image
15 Replies

Hi folks ...has anyone had a flare up after pt?and who has gotten worse or better with it?

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kalecolbe12 profile image
kalecolbe12
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15 Replies
Pinky2233 profile image
Pinky2233

It always gets worse before it gets better.

Depending on the problem, it is important to have a clear diagnosis. Keep a notebook.

If muscular it should flare, die down in a day or two and after about 6-10 visits you should see some improvement

If not you should try out diff Pt’s

Add up if

things feel any looser or more stretched

If the area is less tight

If the area is smaller

If tissue problems are found like

Bands or tiny muscle adhesions

Then what is the pT doing or trained to do to relieve

How they are releasing the problem is important

If no improvement try someone else

kalecolbe12 profile image
kalecolbe12 in reply to Pinky2233

I have been going for 16 visits now and it got a little better but now it's up and down

Pinky2233 profile image
Pinky2233 in reply to kalecolbe12

Why do you think it is up and down now?

kalecolbe12 profile image
kalecolbe12 in reply to Pinky2233

I have no idea....it seems to be the nature of the pelvic floor....I may just get the Botox and see what happens...interestingly enough my new gynecologist told me I may need hormone replacement because I've also been really down and have no libido so I'm going to try that too

Pinky2233 profile image
Pinky2233 in reply to kalecolbe12

Everything is worth a shot.

It’s good you have a doctor who is listening to you and offering suggestions.

Everything positive for me came from a practitioner who very firmly told me to make sure I got a proper diagnosis and make sure I sought out practitioners that I had concrete results.

Hope it helps!

Luckee profile image
Luckee

I went to pelvic PT for about 3 months and it was up and down for the first two. Then I started noting improvement in all the areas we were working on and it continued to get better, I had to stop going and was hoping the improvement would last forever! But to keep the benefits of the healing, you must keep up maintenance treatment. Whether you continue with the PT or do exercises and treatments at home, continued work on this is important. If you don’t ,the benefit can slowly disappear.I’m just starting back after a 4 month hiatus and can’t wait to start again! It does help. Be patient, keep it up and continue your exercises after you stop going to PT! Good luck!

Artsy74 profile image
Artsy74

I have had both happen. It seem like there is a Goldy Locks zone of how much someone works on you or how irritated your nerves are etc. Normally though I feel worse for a day at least and then get better. Sometime I feel bad the almost the whole week through and other weeks I have a really good week. I am also faithful in doing all my stretches at home to relax things, but sometimes I overdo my activities, which can really make for a bad week. My PT person seems a little green to Pelvic PT work, so I am going to try a different person who looks to be better credentialed to see if that makes a difference in my progress.

kalecolbe12 profile image
kalecolbe12 in reply to Artsy74

Thanks yes that's exactly how I am ...one week I am good after pt and the next not so good...it's like two steps forward and 1 step backwards ....I've had it before about 10 years ago and it took about a year to a year-and-a-half to subside so I know it takes a long time

Artsy74 profile image
Artsy74 in reply to kalecolbe12

I know how you feel about the 2 steps forward and 1 back. I have had this going on for 10 years and it comes and goes. This year it came with a vengeance and hasn't let up much. At least this year I got a diagnosis and now feel at least I am on the right track.

Konagirl60 profile image
Konagirl60

Yes. I had metal in my pelvis and on my rectum. The internal manipulation made everything worse. I HAD TO stop treatments.

kalecolbe12 profile image
kalecolbe12 in reply to Konagirl60

A few questions I hope you don't mind..mHow do you know you had metal in those places and what was your orginal diagnosis to start pt....and what are you doing for treatment?

Konagirl60 profile image
Konagirl60

It was seen on an MRI but not reported. The doctors were worried about a law suit.

The migrated Filshie clip that was on my rectum since the fall of 2006 ( I had tingling sensations with long term sitting in the car ) caused the right rear section of my pudendal nerve and my right inferior rectal nerve to be stretched and stuck onto ligaments in my ischial spine.

No medicine I was given was effective because I was purposely diagnosed with post herpetic neuralgia and vulvodynia.

I was brushed off from day one. I had no voice. The doctors thought I had a mental illness. NOT.

Just another typical case of a woman being hysterical for emotional reasons. No. Two nerves were being pinched every time I sat or lay down.

kalecolbe12 profile image
kalecolbe12 in reply to Konagirl60

So where do you go from here?

Artsy74 profile image
Artsy74 in reply to Konagirl60

Yes, I am interested also to know what course of action you might be taking.

Konagirl60 profile image
Konagirl60

Im permanently disabled. I require five medications to help with some of the pain and sleep.

I’ll never sit or lie down again without having very bad neuralgia.

I can’t have sexual relations, can’t run, can’t play tennis, can’t lift anything heavy, can’t ski, can’t hike like before. I walk, swim and snorkel.

I’m on legitimate long term disability. It is what it is; medical fraud and negligence. I can’t find a lawyer who’ll help me sue.

I almost died.

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