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Pelvic Pain Support Network
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Stim

Anyone know of success stories for spinal cord stimulation devices?

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I am sure you have heard enough about neuro stimulation it to know how it is done. I am sure you are aware there is a trial period of a few days to see whether the device is giving a good percentage of comfort to know whether the permanent one will be implanted. There are some success stories and some that are not. After it is fully explained to you and you decide to try it, I say it is certainly worth a trial. I tried the first two, and lastly the DRG, but unfortunately, none of them were successful. I would possibly try another in a few years.

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Do you remember what manufacturer your tried

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Boston Scientific was one of the first ones, can't remember the other from a few years ago. The last was the DRG from for another company, (I can't remember,) now, but used to be by St, Jude Medical. I hope that helps.

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How are you managing your pain now?

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I don't! I take 2400 mg. of Gabapentin, Cymbalta 60 mg, and Seroquil 100 mg per day. I occasionally take a Klonopin half at .25 mg. and occasionally two across counter Naprosyn. I am in pain every waking minute to some degree usually an pain averages about 8 per day. At night I take about 75ML of medical marijuana that helps me sleep. This night medication works, but the day time MM does not.

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What are you doing?

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Im constantly searching for relief, Cymbalta Lyrica Kratom, Weed at night yo help sleep, tramadol during flares.. just had Botox injection looking at LDN

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What did you decide to do? What is LDN? I am waiting to hear from the MRI of both hips on January 18th and see the doctor afterwards for results. I have no other plans. Doctor did tell me to wait until after the MRI results to try for another pain mgmt doctor. My last one had nothing to offer, but a Kenalog Infusion which I don't want to do.

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Do you know what you’re looking for with the hip MRI I hope they find something over the last six months the pain in my hips has become debilitating also goes in my front thighs. LDN is a low-dose drug the blocks receptors in your brain and overtime lessen your pain signals in theory. I have a consult for a spinal stimulator in a few weeks I really don’t want to do it but running out of options

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Do you know what you’re looking for with the hip MRI I hope they find something over the last six months the pain in my hips has become debilitating also goes in my front thighs. LDN is a low-dose drug the blocks receptors in your brain and overtime lessen your pain signals in theory. I have a consult for a spinal stimulator in a few weeks I really don’t want to do it but running out of options

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What is LDN? No I don't know what he is looking for. I think he just wants to see the hips to see what is going on. I understand running out of options....

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Low Dose Naltrexone. It was a drug used for alcohol and opiate withdrawal it blocks the receptors when you take extremely low doses of it. it’s supposed to basically be like a brain reset for your pain so far it’s done nothing.

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