I've had vaginal pain, burning, sting... - Pelvic Pain Suppo...
I've had vaginal pain, burning, stinging, inability to sit for past 8 years. Was diagnosed with Vulvodynia but querying PNE now! Help?? xxx
Me too. Diagnosed one year ago with generalized and provoked vulvodnia but my new physio thinks pudenal neuralgia. I can't sit. Also can't get a straight answer so I never really get proper treatment. Nortriptyline has reduced the pain somewhat along with stretching,walking, stress reduction,healthy diet..its an uphill battle for sure.I live in new York with the best specialists and I think they are all full of crap sometimes.
I'm heading to one of four pudendal surgeons in us. Mine sjantolak@aol.com in Minneapolis.they aren't full of crap.ive tried them all.judy r
Don't want to give you bad information but my experience has been that they more they poke and probe the worse the situation becomes. Surgery was never helpful for me. Giving the problem lots of time to heal by not sitting on the nerve was the best medicine. I do however take Cymbalta for the pain but I can sit normally now. I wish there was one answer for everyone. My seat cushions have been very effective and sold over 500. Many people seem pleased with them. marvelcushion.com Check it out!
I agree that the poking around makes it worse. Walking and relaxing is great but since I work and have two young kids relaxing rarely happens. Now I'm just venting. Nerve pain and muscle spasms is a difficult cycle to break but I'm still hopeful.
Hi I've got exactly the same symptoms and after all sorts of diagnoses including vulvodynia a specialist in London has expressed the opinion that the muscles in the pelvic floor are damaged. I do take a lot of drugs. (had problem for 12 years ) but drugs enable me to sleep and help when the pain is really bad. I do lots of pelvic floor exercises but the condition is getting worse. I have submitted a reply to a question on NHS site, suggesting that the medical profession know very little about this problem. I know that Queen Mary University in London is doing some research in to it. Good luck! You'll be surprised at the number of people who have the same problem.
Well at least I'm not alone and the treatment in the united states isn't great Unless your rich. I take hot baths a lot, take muscle relaxers, tramadol for flare ups...its altered every aspect of my life.
The first surgeon to perfect pudendal surgery is in France .im heading to Minneapolis to sjantolak@aol.com. Research pudendal entrapment . For sleep,Trazedone is so safe ,no hangover,life saver.at least 300 Mgs. Also keep a diary of your drugs,many have rebounds,lose effectiveness and many day drugs keep you awake! I've been through it all.still surviving!but !can't wait for surgery! God bless.Seek the right help! Judy R
hi katy i'm in London as well...do you have vulvar pain? why did they diagnose you with vulvodynia? i have stabbing pain as well...and vibrating pain....
Anamcara what happened with your pain. Did vit tho away?
