PCD and COVID-19

[Cmarlene]

Hi my name is Marlene, 26yo, first time poster. Does anyone want to start a little support group of people with PCD stressing out over this coronavirus? We’re on lockdown right now and can’t even speak to a doctor unless I have symptoms. Info/tips on how to keep your lungs extra healthy? Been doing my pulmozyme/saline 3x a day. I have been stressing so much. Would love to talk to people that are dealing with the same thing.

[fionac66]

Hi Marlene ... sorry for the late reply. We are planning to update our website with more info re Coronavirus and to give you some tips on how to stay well. We are also planning to put some stuff on the Facebook page to try to encourage people to keep active over the next few weeks. Keep an eye on it.

I know it is a very worrying time . We just need to keep a watchful eye on each other in this diffuclt time.

STay well.

[MSC1985 in reply to fionac66]

Hi there,

What is the Facebook page you’re updating? Thanks

[fionac66 in reply to MSC1985]

Www.pcdsupport.org.uk - currently in the news section but we are hoping to have a separate page set up my early next week

[Emma_82]

Hi Marlene,

It's all so scary isn't it. I am.now isolating, keeping the kids at home for the next 12 weeks. My husband still has to work so will be back after our 14 day isolation (my daughter developed a temp and cough on Tues night). I've been doing extra physio, normally I'd be walking lots but I'm a bit scared to leave the house....