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PCD Family Support Group (UK)
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My husband has PCD and we have recently gone through a failed round of IVF with ICSI. His sperm are not motile, and I'm concerned that it is the reason why our first pregnancy ended up with a miscarriage (blighted ovum to be precise). I'm in the States and there doesn't seem to be much PCD support or understanding, especially when it comes to infertility. Does anyone here have experience with IVF and ICSI being successful? I'm looking for hope, but keeping my feet on the ground for what I know could be a blow to our future family.

Thank you.

6 Replies


I’m sorry to hear about your in successful rounds of IVF. It’s a tough process.

We have just had our second round( I have PCD) I belong to a uk forum and have seen a few ladies post in there re: their husbands who have Cystic Fibrosis which clinics seem to have quite a lot of experience with.

They may be able to help support your answer also with their experience also.

I wishing you every bit of luck going forward in your next round!x


Hello. I have PCD (zero motility as well) and my wife and I went through what you are currently going through right now. Our second round of ICSI was successful and my happy and perfectly healthy baby boy is three months old now. It's a grueling process and anyone that hasn't been through it will never understand just how mentally and physically exhausting it actually is. The only advice I can offer is to find good fertility doctors that understand the problem they're dealing with. Also, try to get as much mental rest as possible while staying physically active as much as possible. The same goes for your husband. At last, don't give up hope. Good luck.


Hi Americanuser,

My husband has PCD with 0% motility and I too had a blighted ovum last year, it was our first IVF attempt. I know exactly how you must be feeling.

I’m currently part through way our second attempt (egg collection was today) - praying all works out for us this time 🙏🏼

All the best



Freddo_8 how amazing how similar our story is. I had egg retrieval yesterday. They were able to get 12 mature eggs. Of those 12, we have 4 embryos growing. Hope to do a transfer on Sunday, December 2.


Oh my goodness, how amazing! I had 17 collected but will find out how they are doing in the morning. We’re hoping for transfer on Monday 3rd..

How many did you have transferred last time? I had two.

Wishing you all the luck in the world 🤞🏼


We transferred one last time and will transfer one again this go around. Good luck to you too!


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