PCD Family Support Group (UK)

Adult Care in UK

Hi - as you may know we have been working with the NHS to try to get a fully funded adult PCD Service which allows adult patients to be seen by a PCD specialist at least once a year for an 'MOT' with access to physiotherapy, ENT experts, fertility advice, dieticians and counselling. We need to provide yet more evidence to show why this service is required - so if you are an adult PCD patient living in the UK and you feel that your care isn't as good as it should be then can you contact us with your story? We will of course anonymise any information that you give us but it would be great to hear from you. Please email me by Thursday, 28th July 2016 Fiona at chair@pcdsupport.org.uk

2 Replies

Hi Fiona

Would a response from a soon to be adult service user help? D x


Yes please - eg has transition been good , what concerns do you have about future care etc thanks


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